CF News

March 19, 2019

The New York Organ Donor Network kicked off National Donate Life Month with a groundbreaking campaign to increase organ donation registrations in the state and help relieve the state’s critical organ donor shortage. The initiative features unprecedented activity at DMVs throughout the region, an enrollment contest...

Irish Woman Receives Groundbreaking Lung Transplant

by BEF

CF Community, CF News, Transplants

March 19, 2019

A young Irish woman has made medical history after a double world-first operation to cure her lung condition. Becky Jones, 20, who is now out of intensive care following surgery, said: "I can't, for the life of me, remember feeling so well. The world is officially...

Pittsburgh Hospital Leads in Lung Transplants

by BEF

CF News, Transplants

March 19, 2019

Increased referrals from around the country and surgeons' ability to use donor lungs once considered unsuitable contributed to a record 131 lung transplants at University of Pittsburgh Medical Center last year, officials said Tuesday. The 2010 total was the most among the nation's 66 lung transplant...

Out of Grief Sprouts a Life-Saving Legacy

by BEF

CF News, Transplants

March 19, 2019

You don’t have to be rich, famous or even an adult to leave a memorable legacy that can change lives. Just ask Stacey Oglesby of Lockwood, Mo., whose 15-year-old daughter, Colbey, died in a car accident in 2001. Colbey had told her mother that when she...

Cystic Fibrosis at the Presidential State of the Union VIA SCIENCEMAG.ORG

by BEF

CF Community, CF News, Policy, Research, Therapies

March 19, 2019

"Science gets its moment in Obama's 2015 State of the Union" VIA SCIENCEMAG.ORG By David Malakoff Science rarely makes a major appearance in the President’s annual State of the Union address. Tonight’s speech by President Barack Obama maintained that tradition – but he did take a few moments...

With Resurgence in Polymyxin Use, CHMP Revises Label via Medscape.com

by BEF

CF News, Policy, Therapies

March 19, 2019

SOURCE The European Medicines Agency's Committee for Medicinal Products for Human Use (CHMP) has recommended revisions to the product information for antibiotics known as polymyxins (colistin or colistimethate sodium) for the treatment of serious infections that are resistant to standard antibiotics. Polymyxins, first introduced in the 1960s,...

Updates on Sarah Murnaghan and Pediatric Lung Transplant

by BEF

CF News, Policy

March 19, 2019

Video Source: CNN After six months in the hospital and after two double lung transplants, Sarah is finally returning home. Sarah Murnaghan, a ten year old with cystic fibrosis, has been fighting for her life in the hospital for almost two years - in desperate need of...

Boomer: Sarah’s Transplant is a miracle

by BEF

Boomer Esiason Foundation, CF News, Policy

March 19, 2019

Boomer responds to FOX's Sheppard Smith on the news that 10 year old Sarah Murnaghan has received a lung transplant at Children's Hospital of Philadelphia. The Boomer Esiason Foundation sends Sarah and the Murnaghan family our thoughts and prayers. Recently,...

New Infection Prevention and Control Policy from the CF Foundation

by BEF

CF Community, CF News, Policy

March 19, 2019

Because cystic fibrosis puts the airways at risk for lung infection, the Cystic Fibrosis Foundation has an Infection Prevention and Control Policy in place to protect the health of people with CF at all Foundation events, meetings, and any other gathering places. Proven ways to prevent...

The CF Foundation Expresses Concern About Proposed Disability Benefit Changes

by BEF

CF Community, CF News, Policy

March 19, 2019

The Cystic Fibrosis Foundation, on behalf of the CF community, has taken its concerns about a proposed rule that raises difficulty for people with CF to receive disability benefits to the Social Security Administration (SSA). Recently, the SSA released a proposal that would change the way...

CF News

Boomer Urges Donor Registrations in New York State Campaign

Irish Woman Receives Groundbreaking Lung Transplant

Pittsburgh Hospital Leads in Lung Transplants

Out of Grief Sprouts a Life-Saving Legacy

Cystic Fibrosis at the Presidential State of the Union VIA SCIENCEMAG.ORG

With Resurgence in Polymyxin Use, CHMP Revises Label via Medscape.com

Updates on Sarah Murnaghan and Pediatric Lung Transplant

Boomer: Sarah’s Transplant is a miracle

New Infection Prevention and Control Policy from the CF Foundation

The CF Foundation Expresses Concern About Proposed Disability Benefit Changes

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