CF Community

March 19, 2019

The Boomer Esiason Foundation has posted a new video podcast featuring Valerie Batz, a 52-year-old with cystic fibrosis who discusses life before and after a double-lung transplant. Valerie, who had her transplant 13 years ago, said that pre-transplant, she was frequently sick, everything was an effort,...

Run for a Cause: Set – and Achieve – an Exercise Goal

by BEF

Boomer Esiason Foundation, CF Community, CF News

March 19, 2019

Registering for a local race can be a little scary, especially if you’ve never before run a road race. But setting a goal – like running your first 5K – is a great way to start a fitness program and, hopefully, a healthier lifestyle. It...

CF Awareness Month 2011: The Power of Exercise

by BEF

Boomer Esiason Foundation, CF Community, CF News

March 19, 2019

Each year, the month of May is singled out as CF Awareness Month. It's an opportunity for the cystic fibrosis community to share information about the disease and to get more people involved in efforts to find a cure. This year, however, the Boomer Esiason Foundation...

CF Patients Fight Grim Prospect with Bright Outlook

by BEF

Boomer Esiason Foundation, CF Community, CF News

March 19, 2019

Reprinted from the Patriot Ledger by John Reilly What would it be like to be born with a target on your chest? A bull’s-eye stamped with a number smack in the middle of the hub? Tim Wotton knows. Gunnar Esiason too. At a very young age, they were...

FDA Approves New Powder form of Novartis TOBI

by BEF

CF Community, CF News, Therapies

March 19, 2019

A dry powder form of the antibiotic TOBI - TOBI Podhaler (tobramycin inhalation powder) - used to treat lung infections caused by the bacteria Pseudomonas aeruginosa has been approved by the US Food and Drug Administration (FDA). People with CF ages six and older who have Pseudomonas aeruginosa and...

Progress Made on Cayston® Supply Challenges, CFF Reports

by BEF

CF Community, CF News, Therapies

March 19, 2019

Source: Cystic Fibrosis Foundation Gilead Sciences Inc. announced this week it has made progress resolving a shortage of its inhaled antibiotic Cayston® that began earlier this year. The company said it expects it will be able to lift the restrictions on the drug’s supply in early...

PMD Healthcare Giving Away Spiro PDs for World Asthma Day

by BEF

CF Community, CF News, Therapies

March 19, 2019

PMD Healthcare is encouraging the cystic fibrosis community to enter its sweepstakes contest for a chance to win a Spiro PD -- a personal spirometer. The contest is being held to mark World Asthma Day on May 2. But since Spiro PDs are meant for patients...

Vertex to Expand Access to VX-770 for Patients with Critical Medical Need

by BEF

CF Community, CF News, Therapies

March 19, 2019

Vertex Pharmaceuticals Inc. announced a plan to provide VX-770, a CF medicine in development, to people with the G551D mutation who are in critical medical need and may benefit from treatment prior to potential approval of the drug from the U.S. Food and Drug Administration...

Drug Shortages Force Hospitals to Hunt for Substitutes

by BEF

CF Community, CF News, Therapies

March 19, 2019

A growing shortage of medications for a host of illnesses — from cancer to cystic fibrosis to cardiac arrest — has hospitals scrambling for substitutes to avoid patient harm, and sometimes even delaying treatment. "It's just a matter of time now before we call for a...

Denufosol Phase 3 Trial Published in Leading Medical Journal

by BEF

CF Community, CF News, Therapies

March 19, 2019

Inspire Pharmaceuticals, Inc. announced today that the results from its first Phase 3 clinical trial with denufosol tetrasodium for cystic fibrosis (CF), TIGER-1, have been published in the peer-reviewed publication, American Journal of Respiratory and Critical Care Medicine (AJRCCM). Denufosol is an investigational, inhaled, novel...

CF Community

New Podcast Discusses Life Before and After a Double-Lung Transplant

Run for a Cause: Set – and Achieve – an Exercise Goal

CF Awareness Month 2011: The Power of Exercise

CF Patients Fight Grim Prospect with Bright Outlook

FDA Approves New Powder form of Novartis TOBI

Progress Made on Cayston® Supply Challenges, CFF Reports

PMD Healthcare Giving Away Spiro PDs for World Asthma Day

Vertex to Expand Access to VX-770 for Patients with Critical Medical Need

Drug Shortages Force Hospitals to Hunt for Substitutes

Denufosol Phase 3 Trial Published in Leading Medical Journal

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