Author: BEF

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CF Podcasts
August 21, 2018

In the latest Cystic Fibrosis Podcast, Jerry speaks with Emily Kramer-Golinkoff about the role of a patient advocate organization in driving drug development in rare disease. Emily, a 33 year old who has a nonsense mutation of CF, is a co-founder of Emily’s Entourage, a 501...

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CF Podcasts, Lung Transplants
June 12, 2018

In this feature of The Path Forward with CF series, Dr. Hans-Willem Snoeck, Professor of Medicine (Microbiology and Immunology) at CUMC, sits down to discuss stem cell research as it relates to CF. Because lung cells regenerate and repair themselves regularly, researchers believe that – some...

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CF Podcasts
May 23, 2018

In his latest video podcast, Jerry spoke with kids from Stony Point Elementary school, where the North Rockland Sports Day was created; it all started with a class of 3rd graders who wanted to raise money for charity in a fun, inspiring way. Now, four years...