BEF, Author at The Boomer Esiason Foundation

March 19, 2019

The U.S. Department of Health and Human Services (HHS) on May 31 announced new steps to reduce premiums and make it easier for Americans to enroll in the Pre-Existing Condition Insurance Plan. Premiums for the Federally-administered Pre-Existing Condition Insurance Plan (PCIP) will drop as much as...

Clinical Trials Legislation Takes Effect

by BEF

CF News, Policy

March 19, 2019

A new law that allows patients with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits went into effect yesterday. The bill, known as the “Improving Access to Clinical Trials Act” (IACT), was signed into law in October 2010. Because of...

FDA Panel Not Sold on Personal Genetic Testing

by BEF

CF News, Policy

March 19, 2019

A Food and Drug Administration advisory panel said March 8 that genetic tests directly marketed to consumers should be allowed only under a doctor's supervision. Personal testing, which is mainly available online from firms operating outside traditional medical institutions, can produce ambiguous or misleading results without...

‘Improving Access to Clinical Trials Act’ Passes U.S. House; Heads to President for Signatur

by BEF

CF News, Policy

March 19, 2019

The U.S. House of Representatives passed the "Improving Access to Clinical Trials Act" (I-ACT), in a victory for the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The bill, which passed the Senate Aug. 5, now goes to President Obama's desk for his...

‘Improving Access to Clinical Trials Act’ Passes U.S. Senate in Victory for CF Advocates

by BEF

CF News, Policy

March 19, 2019

The U.S. Senate last night passed the "Improving Access to Clinical Trials Act" (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The legislation enables patients with rare diseases to participate in clinical trials without...

Cystic Fibrosis Podcast 212: Never Say Never with Gary Klausner

by BEF

Adulthood and CF, CF Podcasts, Lung Transplants

March 12, 2019

In the latest CF podcast, 53-year-old Gary Klausner shares his unique story. He is 20 years post double lung transplant, married with two children, and living his life to the fullest. He discusses how his positive attitude has gotten him through the difficult times, including...

Cystic Fibrosis Podcast 211: Life After Chronic Rejection Post Transplant

by BEF

CF Podcasts, Lifestyle Adjustments, Lung Transplants

February 19, 2019

In Jerry Cahill’s latest podcast, Katy Starck-Monte and her husband Joey sit down to share their story. Diagnosed at 13 months old, Katy was born the youngest of five sisters. With the support and help of her family, she lived a relatively normal life –...

Cystic Fibrosis Podcast 210: The Future of Double Lung Transplants

by BEF

CF Podcasts, Lung Transplants

February 12, 2019

Jerry Cahill and Dr. Joshua Sonett, Professor of Surgical Oncology, Chief of the Division of General Thoracic Surgery at Columbia University Irving Medical Center, and Director of The Price Family Center for Comprehensive Chest Care, Lung and Esophageal Center– and Jerry’s transplant surgeon! – discuss...

Cystic Fibrosis Podcast 209: The Role of a Lung Transplant Coordinator Pre and Post-Transplant

by BEF

CF Podcasts, Lung Transplants

February 5, 2019

In the latest CF Podcast, Jerry Cahill’s lung transplant coordinator at CUIMC, Maggie Carroll, sat down to discuss her role as a Physician Assistant in the Lung Transplant Program. As a PA, she helps manage patients’ pulmonary issues in addition to any other problems that...

Cystic Fibrosis Podcast 208: A Day in the Life of a Cystic Fibrosis Patient

by BEF

CF Podcasts

January 29, 2019

In Jerry’s latest video podcast, he explores the daily life of a cystic fibrosis patient and his or her family and support system. Because CF is 24/7, it can take a toll on all of those affected by it. But with positivity and strength, those...

Author: BEF

HHS Reduces Insurance Premiums for Pre-Existing Condition Plan

Clinical Trials Legislation Takes Effect

FDA Panel Not Sold on Personal Genetic Testing

‘Improving Access to Clinical Trials Act’ Passes U.S. House; Heads to President for Signatur

‘Improving Access to Clinical Trials Act’ Passes U.S. Senate in Victory for CF Advocates

Cystic Fibrosis Podcast 212: Never Say Never with Gary Klausner

Cystic Fibrosis Podcast 211: Life After Chronic Rejection Post Transplant

Cystic Fibrosis Podcast 210: The Future of Double Lung Transplants

Cystic Fibrosis Podcast 209: The Role of a Lung Transplant Coordinator Pre and Post-Transplant

Cystic Fibrosis Podcast 208: A Day in the Life of a Cystic Fibrosis Patient

Never miss an update. Subscribe to our emails!