BEF, Author at The Boomer Esiason Foundation

March 19, 2019

In the latest podcast from the Boomer Esiason Foundation, director Marc Smolowitz discusses how “The Power of Two” documentary film is raising awareness of cystic fibrosis and organ donation. “The Power of Two” offers an intimate portrayal of the bond...

National Minority Donor Awareness Day Marks Fifteenth Anniversary on August 1

by BEF

CF Community, CF News, Transplants

March 19, 2019

August 1 marks the fifteenth anniversary of National Minority Donor Awareness Day, a special day set aside each year to call public attention to the critical need for people of African-American, Hispanic and other minority heritages to register as organ and tissue donors and share...

Teen with CF Educates Multicultural Populations About Organ Donation and Coping with Serious Illness

by BEF

CF Community, CF News, Transplants

March 19, 2019

Tyler D. Nelson, 17, knows all too well what it is to worry. At just two days old, Tyler was diagnosed with cystic fibrosis and is currently waiting for lung and liver transplants at Texas Children’s Hospital. But despite the challenges he faces, Tyler has managed to...

Irish Woman Receives Groundbreaking Lung Transplant

by BEF

CF Community, CF News, Transplants

March 19, 2019

A young Irish woman has made medical history after a double world-first operation to cure her lung condition. Becky Jones, 20, who is now out of intensive care following surgery, said: "I can't, for the life of me, remember feeling so well. The world is officially...

Boomer Urges Donor Registrations in New York State Campaign

by BEF

Boomer Esiason Foundation, CF News, Transplants

March 19, 2019

The New York Organ Donor Network kicked off National Donate Life Month with a groundbreaking campaign to increase organ donation registrations in the state and help relieve the state’s critical organ donor shortage. The initiative features unprecedented activity at DMVs throughout the region, an enrollment contest...

Pittsburgh Hospital Leads in Lung Transplants

by BEF

CF News, Transplants

March 19, 2019

Increased referrals from around the country and surgeons' ability to use donor lungs once considered unsuitable contributed to a record 131 lung transplants at University of Pittsburgh Medical Center last year, officials said Tuesday. The 2010 total was the most among the nation's 66 lung transplant...

Out of Grief Sprouts a Life-Saving Legacy

by BEF

CF News, Transplants

March 19, 2019

You don’t have to be rich, famous or even an adult to leave a memorable legacy that can change lives. Just ask Stacey Oglesby of Lockwood, Mo., whose 15-year-old daughter, Colbey, died in a car accident in 2001. Colbey had told her mother that when she...

Cystic Fibrosis at the Presidential State of the Union VIA SCIENCEMAG.ORG

by BEF

CF Community, CF News, Policy, Research, Therapies

March 19, 2019

"Science gets its moment in Obama's 2015 State of the Union" VIA SCIENCEMAG.ORG By David Malakoff Science rarely makes a major appearance in the President’s annual State of the Union address. Tonight’s speech by President Barack Obama maintained that tradition – but he did take a few moments...

With Resurgence in Polymyxin Use, CHMP Revises Label via Medscape.com

by BEF

CF News, Policy, Therapies

March 19, 2019

SOURCE The European Medicines Agency's Committee for Medicinal Products for Human Use (CHMP) has recommended revisions to the product information for antibiotics known as polymyxins (colistin or colistimethate sodium) for the treatment of serious infections that are resistant to standard antibiotics. Polymyxins, first introduced in the 1960s,...

Updates on Sarah Murnaghan and Pediatric Lung Transplant

by BEF

CF News, Policy

March 19, 2019

Video Source: CNN After six months in the hospital and after two double lung transplants, Sarah is finally returning home. Sarah Murnaghan, a ten year old with cystic fibrosis, has been fighting for her life in the hospital for almost two years - in desperate need of...

Author: BEF

New Podcast: Marc Smolowitz, Director of ‘The Power of Two’

National Minority Donor Awareness Day Marks Fifteenth Anniversary on August 1

Teen with CF Educates Multicultural Populations About Organ Donation and Coping with Serious Illness

Irish Woman Receives Groundbreaking Lung Transplant

Boomer Urges Donor Registrations in New York State Campaign

Pittsburgh Hospital Leads in Lung Transplants

Out of Grief Sprouts a Life-Saving Legacy

Cystic Fibrosis at the Presidential State of the Union VIA SCIENCEMAG.ORG

With Resurgence in Polymyxin Use, CHMP Revises Label via Medscape.com

Updates on Sarah Murnaghan and Pediatric Lung Transplant

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