BEF, Author at The Boomer Esiason Foundation

March 20, 2019

Over the weekend, the cystic fibrosis and sports writing communities lost an important voice with the passing of Frank DeFord. This morning, Boomer reflected on his nearly 30 year friendship with Frank with the CBS Sports Minute.In the below segment, you can watch Frank Deford sit down with Boomer Esiason...

Managing Your Cystic Fibrosis Treatment Plan for a Fuller Life via Web MD

by BEF

Boomer Esiason Foundation, CF Community, CF News

March 20, 2019

Web MD Education and the Boomer Esiason Foundation, through a strategic collaboration, developed an activity for people with cystic fibrosis (CF) and their care partners, as well as others who want to learn why and how to follow a CF treatment plan more consistently. The goals...

PTC Therapeutics Announces Results from Pivotal Phase 3 Clinical Trial of Ataluren

by BEF

CF Community, CF News, Research, Therapies

March 20, 2019

SOURCE: PRESS RELEASE VIA PTS THERAPEUTICSPTC Therapeutics Announces Results from Pivotal Phase 3 Clinical Trial of Ataluren in Patients Living with Nonsense Mutation Cystic Fibrosis - ACT CF trial missed primary and secondary endpoints -- Company to host conference call today, March 2nd at 9:00 am...

2016-2017 Sacks for CF Scholarship Winners

by BEF

Boomer Esiason Foundation, CF News

March 20, 2019

The Boomer Esiason Foundation has awarded prestigious "Sacks for CF" academic scholarships to 30 outstanding students with cystic fibrosis.Through the NFL season, longtime BEF partner Abbvie makes a donation to the BEF Sacks for CF scholarship program for every quarterback sack recorded during NFL Monday...

When you give, we give back!

by BEF

Boomer Esiason Foundation, CF News

March 20, 2019

DONATE TODAYDuring the month of December 2016, the Boomer Esiason Foundation is giving back to our donors. Make a donation at one of the following levels, and we will send you a few special gifts! $1005 Team Boomer bands, 5...

Vertex Announces Planned Initiation of Phase 2 Studies Evaluating Next-Generation Correctors

by BEF

CF Community, CF News, Research, Therapies

March 20, 2019

FULL PRESS RELEASE HEREVertex Announces Planned Initiation of Phase 2 Studies Evaluating the Next-Generation Correctors VX-440 and VX-152 in Triple Combination Regimens to Treat the Underlying Cause of Cystic Fibrosis VX-440 to be evaluated as part of 4-week triple combination dosing with tezacaftor (VX-661) and ivacaftor;...

BEF to Participate in 2016 Cantor Fitzgerald Charity Day

by BEF

Boomer Esiason Foundation, CF Community, CF News

March 20, 2019

Boomer Esiason Foundation to Participate in 2016 Cantor Fitzgerald Charity DayEvent to Honor the 15th Anniversary of the 9/11 World Trade Center AttacksThe Boomer Esiason Foundation (BEF), a nonprofit organization dedicated to empowering the cystic fibrosis (CF) community through fundraising for research, programs, scholarships, transplant...

Senators Markey and Grassley Pass Bipartisan Resolution Designating May 2016 CF Awareness Month

by BEF

CF News, Policy

March 20, 2019

SOURCEWashington (May 26, 2016)- Senators Edward J Markey (D-Mass.) and Chuck Grassley (R-Iowa) today applauded the passage of a bipartisan resolution to designate May 2016 as Cystic Fibrosis Awareness Month. The resolution strives to bring attention to this tragic disease, acknowledges the tremendous investments and...

Vertex Launches All in for CF

by BEF

CF Community, CF News

March 19, 2019

2,000 dedicated Vertex employees released an open letter to the CF community annoucning a brand new initiative. It reads as follows: Each May, the cystic fibrosis (CF) community recognizes CF Awareness Month to raise awareness of the disease and to underscore that, despite progress made in...

OneRepublic Features Teen with Cystic Fibrosis in New Music Video via CFF.org

by BEF

CF Community, CF News

March 19, 2019

SOURCE September 25, 2014 Bryan Warnecke, who has cystic fibrosis, is featured in a new music video from the American pop band OneRepublic. Their new hit song, “I Lived,” focuses on living life to the fullest. The American pop band OneRepublic, known for chart-topping hits such as “Apologize”...

Author: BEF

Remembering Friend of BEF and CF Advocate, Frank DeFord

Managing Your Cystic Fibrosis Treatment Plan for a Fuller Life via Web MD

PTC Therapeutics Announces Results from Pivotal Phase 3 Clinical Trial of Ataluren

2016-2017 Sacks for CF Scholarship Winners

When you give, we give back!

Vertex Announces Planned Initiation of Phase 2 Studies Evaluating Next-Generation Correctors

BEF to Participate in 2016 Cantor Fitzgerald Charity Day

Senators Markey and Grassley Pass Bipartisan Resolution Designating May 2016 CF Awareness Month

Vertex Launches All in for CF

OneRepublic Features Teen with Cystic Fibrosis in New Music Video via CFF.org

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