BEF, Author at The Boomer Esiason Foundation

March 20, 2019

DONATE TODAYDuring the month of December 2016, the Boomer Esiason Foundation is giving back to our donors. Make a donation at one of the following levels, and we will send you a few special gifts! $1005 Team Boomer bands, 5...

Vertex Announces Planned Initiation of Phase 2 Studies Evaluating Next-Generation Correctors

by BEF

CF Community, CF News, Research, Therapies

March 20, 2019

FULL PRESS RELEASE HEREVertex Announces Planned Initiation of Phase 2 Studies Evaluating the Next-Generation Correctors VX-440 and VX-152 in Triple Combination Regimens to Treat the Underlying Cause of Cystic Fibrosis VX-440 to be evaluated as part of 4-week triple combination dosing with tezacaftor (VX-661) and ivacaftor;...

BEF to Participate in 2016 Cantor Fitzgerald Charity Day

by BEF

Boomer Esiason Foundation, CF Community, CF News

March 20, 2019

Boomer Esiason Foundation to Participate in 2016 Cantor Fitzgerald Charity DayEvent to Honor the 15th Anniversary of the 9/11 World Trade Center AttacksThe Boomer Esiason Foundation (BEF), a nonprofit organization dedicated to empowering the cystic fibrosis (CF) community through fundraising for research, programs, scholarships, transplant...

Senators Markey and Grassley Pass Bipartisan Resolution Designating May 2016 CF Awareness Month

by BEF

CF News, Policy

March 20, 2019

SOURCEWashington (May 26, 2016)- Senators Edward J Markey (D-Mass.) and Chuck Grassley (R-Iowa) today applauded the passage of a bipartisan resolution to designate May 2016 as Cystic Fibrosis Awareness Month. The resolution strives to bring attention to this tragic disease, acknowledges the tremendous investments and...

Vertex Launches All in for CF

by BEF

CF Community, CF News

March 19, 2019

2,000 dedicated Vertex employees released an open letter to the CF community annoucning a brand new initiative. It reads as follows: Each May, the cystic fibrosis (CF) community recognizes CF Awareness Month to raise awareness of the disease and to underscore that, despite progress made in...

OneRepublic Features Teen with Cystic Fibrosis in New Music Video via CFF.org

by BEF

CF Community, CF News

March 19, 2019

SOURCE September 25, 2014 Bryan Warnecke, who has cystic fibrosis, is featured in a new music video from the American pop band OneRepublic. Their new hit song, “I Lived,” focuses on living life to the fullest. The American pop band OneRepublic, known for chart-topping hits such as “Apologize”...

The CF Foundation Provided New Resources on Infection Prevention and Control via CFF.org

by BEF

CF Community, CF News

March 19, 2019

SOURCE: CFF.org The Cystic Fibrosis Foundation has released new health education materials to reduce the risk of people with cystic fibrosis getting and spreading dangerous germs that can lead to serious lung infections. The materials are part of the Foundation’s expanded effort to help people with...

Application Now Open for Students with Cystic Fibrosis for the 2014 AbbVie CF Scholarship

by BEF

CF Community, CF News

March 19, 2019

PRESS RELEASE · Scholarship recognizes 40 exceptional students with cystic fibrosis (CF) who serve as role models for the community through academic excellence, creativity and community service · Students selected as 2014 recipients will compete for Thriving Student Scholarship awards of $22,000 each · Application available at http://www.AbbVieCFScholarship.com NORTH...

A Young Man Reaches Out to Others with CF

by BEF

CF Community, CF News

March 19, 2019

SOURCE - UT San Diego craig.malveaux@utsandiego.com © Copyright 2014 The San Diego Union-Tribune, LLC. An MLIM LLC Company. All rights reserved. Westview sophomore Aaron Fox (right) has cystic fibrosis, but he’s able to keep the disease in check by undergoing 40 minutes of daily treatment and leading an...

Richard Weiss, who coined phrase 65 Roses, loses battle with cystic fibrosis at age 51

by BEF

CF Community, CF News

March 19, 2019

SOURCE WEST PALM BEACH, Fla. - If you hear a child who has cystic fibrosis refer to their disease as '65 Roses' you can thank Richard Weiss. When he was 4 years old, he overheard his mother, Mary Weiss, who started the Palm Beach County chapter of...

Author: BEF

When you give, we give back!

Vertex Announces Planned Initiation of Phase 2 Studies Evaluating Next-Generation Correctors

BEF to Participate in 2016 Cantor Fitzgerald Charity Day

Senators Markey and Grassley Pass Bipartisan Resolution Designating May 2016 CF Awareness Month

Vertex Launches All in for CF

OneRepublic Features Teen with Cystic Fibrosis in New Music Video via CFF.org

The CF Foundation Provided New Resources on Infection Prevention and Control via CFF.org

Application Now Open for Students with Cystic Fibrosis for the 2014 AbbVie CF Scholarship

A Young Man Reaches Out to Others with CF

Richard Weiss, who coined phrase 65 Roses, loses battle with cystic fibrosis at age 51

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