"I try to reassure everyone who has been affected by this disease that CF isn't the end of the world if you don't want it to be."
The experience of living with cystic fibrosis is markedly different today than it was decades ago. Thanks to the discovery of the CF gene, the availability of effective drug therapies and advances in technology, the 30,000 Americans who deal with the disease day in and day out are living longer and fuller lives. In a word, they are thriving.
2013
2012
2011
2010

Wind Sprint 22: Transitioning from Pediatric to Adult CF Care

Episode 22 of the CF Wind Sprint videos is the first in a three-part series examining the major transitioning stages for people with cystic fibrosis. 

In this episode, we meet Jillian Monitello, a native of Long Island, N.Y. Jillian candidly talks about her experience in transitioning from pediatric CF care to adult CF care. Jillian recalls the stress she felt when first told she would need to move into adult CF care and also shares some tips about making that transition. In the end, thanks to the guidance of her care team, Jillian experienced a smooth transition.

The next transitioning Wind Sprints will discuss transitioning from high school to college, and from college to the career world.  These CF Wind Sprints are made possible by a grant from Novartis Pharmaceuticals.

 

 

PREVIOUS
NEXT