CYSTIC FIBROSIS NEWSLETTERS
BEF UPDATE NEWSLETTER (PDF)
BEF Update
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will provide you with Cystic Fibrosis news, treatment updates and therapies
and information about the Boomer Esiason Foundation.
CF News From Around The World
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Fibrosis Research and CF fundraising activities.
At Home, is a free publication from McNeil Pharmaceutical for CF patients and families. Call: 1-800-232-8773.
CFRI News is published three times a year and distributed free of charge to friends of Cystic Fibrosis Research, Inc. Call: 1-415-856-0546.
CF Roundtable Publication of United States Adult Cystic Fibrosis Foundation. Write: USACFA - PO Box 1618, Gresham OR 97030-0519. Call: 1-503-669-3561.
Circle of Friends is published twice each year, for CF adults, by the Canadian Cystic Fibrosis Foundation. A $15.00 donation is requested. For information contact Mike Burrill, 8 Murdock Avenue, Toronto, Ontario, Canada, M4C 1E4.
Commitment is a free publication of the Cystic Fibrosis Foundation. For information write to: Commitment, c/o Cystic Fibrosis Foundation, 6931 Arlington Rd., Bethesda, MD 20814-5231.
CyFi Express is a quarterly newsletter for teens and young adults who have CF. Published by CyFI, Inc. it is free to CF patients, others may subscribe for $10 a year. For information, call: 1-813-544-3322.
CF Worldwide For information go to
www.cfww.org
Reaching Out is a newsletter for CF patients and their families, published three times a year by Susan Burroughs (a CF adult). Minimum $10 donation is requested annually. Call: 1-404-381-2552.
The Informer is a free monthly publication from the Central Florida CF Support Group. Call: 1-800-741-4427.
CF Life A new Newsletter published by Ortho-McNeil, maker of Pancrease and Pancrease MT (pancrelipase) capsules. News and Opinions for today's adults with cystic fibrosis.
At Home Up-To-Date News and Views on Cystic Fibrosis Published as a service by Ortho-McNeil Pharmaceutical, maker of Pancrease and Pancrease MT (pancrelipase) capsules. to suscribe: Call 1-800-CF-CURRENTS 1-800-232-8773 or write CF Currents P.O. Box 2147 Bristol, PA 19007-9510 or subscribe by visiting their web site. http://www.cfcare.com
We want your help!
If you find a great cystic fibrosis resource and it is not listed in our cystic fibrosis online resource section, please e-mail us at info@esiason.org and we will add it to our list.
