2013
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June
- Boomer Esiason Continues his Fight Against CF
- Updates on Sarah Murnaghan and Pediatric Lung Transplant
- Jerry Cahill presented with the Jacoby Angel Award
- Boomer: Sarah’s Transplant is a miracle
MayApril- May is CF Awareness Month!
- Mamaroneck Flowers and BEF Team Up
- Gunnar Esiason: The Face Behind BEF
- Phase 2 Study of Kalydeco and VX-661 Shows Promising Increases in Lung Function
- One Year Post Transplant: Where is Jerry today?
- New Infection Prevention and Control Policy from the CF Foundation
- The CF Foundation Expresses Concern About Proposed Disability Benefit Changes
MarchFebruary
2012
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DecemberNovember
- 2012 Champions for Charity
- Jerry Cahill, 56-Year Old CF Survivor and Athlete, Featured on CBS’s Courage in Sports
October- NHLBI has Launched a Program on Early Cystic Fibrosis Lung Disease
- Team Boomer’s First Year in the Bank of America Chicago Marathon was a Success
- CFF and Walgreens Team Up
- A Heroic Group of Women Triumphing over Cystic Fibrosis
September- Congratulations to the 2012 2nd Quarter Recipients of the BEF Scholarship
- Archbishop John Hughes Council #481 to host a Disco Night BEF Fundraiser
- Boomer’s Still Battling Cystic Fibrosis
- Congratulations to the 2012 Recipients of the Scholarship of the Arts
- FDA Advisory Committee supports the use of Novartis inhalation powder, Tobramycin
- Congratulations to Courtney Robinson, 2012 Rimington Trophy Scholarship Winner
August- Sabrina Smith Walker, a Club CF Participant, is In the News
- Congratulations Emily Nickels and Clayton Roll, 2012 Exercise for Life Scholarship Winners
- Congratulations to the 2012 Rosemary Quigley Scholarship Recipients!
- Gene Network Restores Cystic Fibrosis Protein Function
- Congratulations to Olivia Burke, the most recent recipient of the Bonnie Strangio Scholarship
- Additions have been made to the You Cannot Fail store!
July- Vertex Receives European Approval for KALYDECO™
- Jerry Cahill featured in Everyday Health
- Team Boomer Website
- Boomer’s Cystic Fibrosis Run to Breathe
- 3 Months Post-Transplant, Jerry Cahill will Run to Breathe
- Barron helps kids with Cystic Fibrosis Climb the “Poor Man’s” Everest
June- Final Results from Phase 2 Combination Study of Kalydeco and VX-809 Show Significant Improvements
- Legislation to Expedite Approval of Rare-Disease Drugs Moving Through Congress
- BEF Releases New Wind Sprint on Working Out While Traveling
- PTC Therapeutics Announces Promising Results from Phase 3 Trial of Ataluren
- BEF Announces ‘You Cannot Fail… You are the Hero of Your Own Story’ Scholarship for CF Students
- June Deadlines Near for Five CF Scholarships
- CFChef Announces New Recipe Contests for 2012
May- A Letter From Boomer: Causes for Celebration
- New Podcast: Bobby Bebber on Overcoming All Obstacles with CF
- Progress Made on Cayston® Supply Challenges, CFF Reports
- Concentrated Saline Therapy Not Effective in Young Children with CF, Study Finds
- FDA Approves New Drug Application for Digestive Care’s PERTZYE
- Double-Lung Transplant Has ‘Humbled Me Dramatically,’ Cahill Says
- Online CF Quiz from Gilead Sciences Tests Knowledge, Supports BEF
- BEF Expands Amazon Storefront to Include More ‘You Cannot Fail’ Merchandise
- Second Annual NY Yankees Celebrity Softball Event to Benefit BEF
- Application Deadline for Scholarship of the Arts is May 16
- NYRR Opens Registration for 2012 Boomer’s CF Run to Breathe
- Vertex Reports Promising Interim Results for Phase 2 Trial of Kalydeco and VX-809
- Charity Navigator Awards BEF Second Consecutive Four-Star Rating
- ‘You Cannot Fail’ Book Now Available on Amazon.com
- Tickets on Sale Now for 2012 Refi Rock Spring Fling!
- Documentary on Eva Markvoort to Air May 3 on Oprah Winfrey Network
- New Facebook Tool Allows Members to Share Organ Donor Status
- Two Weeks Post-Transplant, Jerry Cahill Speaks Out on Organ Donation, CF Awareness Month
April- ‘Donate Life Month’ Takes on New Meaning with Jerry Cahill Lung Transplant
- New Website Offers Insight on Cystic Fibrosis Gene Mutations
- New Wind Sprint: Club CF Is Valuable Online Resource for CF Community
- Boston College Club Lacrosse Teams Compete to Fight CF
- Maryland Football ‘Lift for Life’ Event to Support BEF and CF Community
- Atlantic Cup Sailing Race to Benefit BEF and CF Community
- April 17 Deadline Approaches for CFCareForward Scholarship
- Celebrate ‘Donate Life Month’ By Registering to Become an Organ Donor
March- BEF Launches Online Shopping Cart Featuring ‘You Cannot Fail’ Merchandise
- New Podcast: Rick Lerz One Year After a Double-Lung Transplant
- Team Boomer Hits the Streets at NYC Half-Marathon
- Hoops and Hops: Check Out the Photos
- PMD Healthcare Giving Away Spiro PDs for World Asthma Day
- iTunes Offers App for CF Wind Sprint Video Series
- New CF Wind Sprint Looks at Transitioning from College to the Career World
- FDA Approves New Enzyme Therapy for People with CF
February- New CF Wind Sprint Looks at Transitioning from High School to College
- Rimington Trophy Scholarship Established to Support Students with CF
- Gilead Sciences Working to Address Supply Shortage of Cayston
- PMD Healthcare Launches Personal Spirometer To Monitor Lung Function
- New CF Wind Sprint Looks at Transitioning from Pediatric to Adult CF Care
- BEF Awards ‘Sacks for CF’ Scholarships to Outstanding Students with Cystic Fibrosis
- Sales of Team Boomer ‘Vintage’ Tees to Benefit Fight Against CF
January- FDA Approves KALYDECO™; Vertex to Begin Shipments Immediately
- Rimington Trophy Presented to ‘Unquestioned Leader’ of Michigan Football Team
- New Podcast: Colleen Caul’s ‘Run for Roses’
- Vertex Planning Additional KALYDECO™ Clinical Trials in 2012
- BEF Establishes Gunnar Esiason Scholarship Fund at Boston College
- Boomer Esiason to Co-Host ‘Live! with Kelly’ Show on January 11
- Rimington Trophy to be Presented to Michigan’s Molk on January 14
- Help Moganko Meet the Muppets and Boost CF Awareness
- What’s Your New Years Resolution? Want to Exercise More? Join Team Boomer!
2011
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December
- Sydney Esiason Discusses Being a CF Sibling
- 7th Annual Berkeley College Charity Car Show Raises More Than $25,000 for BEF
- Kalydeco (VX-770) Available to People with Critical Medical Need
- Mannitol Shown to Improve Lung Function When Added to Standard CF Therapy
- FDA Grants Priority Review for KALYDECO™ from Vertex Pharmaceuticals
- New CF Wind Sprint Demonstrates Exercises with Kettlebells
- Help Us Make a Difference in the Cystic Fibrosis Community
- YOU CANNOT FAIL Book and Merchandise Available Online, Just In Time for Holiday Gift Giving
- Michigan’s David Molk Named Recipient of 2011 Rimington Trophy
- New Podcast: Josh Mogren on Moving Forward After Losing a Sibling to CF
November- New Clues for Improving Antibiotics for Tolerant Bacteria
- How CF-Related Diabetes Differs from Types 1 and 2
- Genzyme and CFFT Announce Collaboration to Discover New CF Drugs
- December 15 Deadline Approaching for BEF Academic Scholarship
- Boomer Esiason Foundation Unveils New Logo for Team Boomer Athletic Program
- Team Boomer Opens Registration for 2012 NYC Half-Marathon
- Abbott Announces Winners of ‘CFChef Challenge’ Recipe Contest
- Team Boomer Marathoners Raise More Than $500,000 to Support CF Community
- CBS New York Features Team Boomer in Marathon Coverage
- New York Times Article Features Team Boomer Marathoner
- BEF Launches YOU CANNOT FAIL Campaign with Sale of Inspirational Book by Jerry Cahill
- Boomer’s Team Triumphs in Fordham Basketball Scrimmage
- New England Journal of Medicine Features Study of Kalydeco (VX-770)
October- Check Out the Photos from the 2011 Refi Rock Halloween Event
- Thirty Outstanding Students with CF to Receive ‘Sacks for CF’ Scholarship
- Vertex Applies to FDA for Priority Review, Approval of VX-770
- New Cystic Fibrosis Wind Sprint Demonstrates Reaching the Back with a Percussor
- Team Boomer Marathoner Qualifies for 2012 Olympic Trials
- Boomer Esiason to Host CF Education Event in Philadelphia
- NYRR Highlights Team Boomer Marathoner with CF
- Agile Sciences Gets NIH Grant to Study Treatment for Lung Infections
- FDA Requests Additional Study of Arikace®, Insmed Says
September- New Book on Ironman Triathletes Highlights Athlete with CF
- New Podcast: Marc Smolowitz, Director of ‘The Power of Two’
- Fishing and Golf Event in Mexico to Benefit CF, MS
- Nick News Special Focuses on Organ Donation, Features Teen with CF
- Tickets on Sale for Annual Refi Rock Halloween Party
- Troupe with CF Dancer Finishes in Second Place on America’s Got Talent
- CF Chef Recipe Contest Deadline is September 28
- Boomer and Carton Host Special Guests at BGC Charity Day Broadcast
- New Podcast Features Jerry Cahill on Getting Involved in the CF Community
- Boomer Esiason Remembers 9/11 in NFL Video Interview
- Dancer With CF Part of Troupe in Finals of 'America's Got Talent'
- Sales of Vineyard Vines Tie and Tote Bag Benefit BEF
- BEF Board Member Timothy O’Brien Remembered as 9/11 Anniversary Nears
August- 2011 Exercise for Life Scholarship Recipients Named by Boomer Esiason Foundation
- 'Power Of Two' Movie Hits Oscar Qualifying Circuit; Documentary Features Sisters With CF
- Team Boomer Issues Last Call for Guaranteed Spots in the 2011 ING NYC Marathon
- Save the Date: 2012 Boomer's CF Run to Breathe
- Pulmatrix Invests in Clinical Programs in Cystic Fibrosis and COPD
- BEF Releases Video Recapping Boomer's CF Run to Breathe
- 2011 CF Scholarship Recipients Named by Boomer Esiason Foundation
- Insmed Announces Clinical Hold on ARIKACE® Phase 3 Clinical Trials
- New York Yankees Present BEF with Proceeds from Softball Event
- New CF Wind Sprint Demonstrates Simple Exercises for the Legs
- CF Foundation Kicks Off 'Make Every Breath Count' Campaign
- National Minority Donor Awareness Day Marks Fifteenth Anniversary on August 1
- Teen with CF Educates Multicultural Populations About Organ Donation and Coping with Serious Illness
July- Vertex Plans to Submit New Drug Application for VX-770 to FDA in October
- Most Parents Unaware of Medical Research Opportunities for Their Kids
- Changes in Lung Stem Cells May Contribute to CF Progression
- Electromed Awards Jerry Cahill First Annual Distinguished Service Award
- New Podcast Discusses Organizing CF Medical Information and Being Your Own Patient Advocate
- Battle of the Bugs: Pseudomonas Breaches Cell Wall of Rival Bacteria Without Hurting Itself
- Bacteria Use Batman-Like Grappling Hooks to 'Slingshot' on Surfaces, Researchers Find
- CF Chef Recipe Contest and Online Nutrition Program Launched by Abbott
- New Invasive Diagnostic Procedure Seems to Be No Advantage Over Current Standard Procedure
- FDA Approves 25,000 Lipase-Unit Strength of ZENPEP®
- Results and Photos from the CF Run to Breathe
- Thousands Participate in CF Run to Breathe
- BEF President Dave Rimington Featured on ESPN.com
- New Podcast Discusses Being a CF Parent
- The Summer's Hottest Party: Boomer and Carton on Fire Island
- Civilian Military Combine to Benefit BEF
June- New CF Wind Sprint Demonstrates Simple Upper Body Exercises
- NY Yankees Fundraiser: Check Out the Photos!
- Researchers Discover New Airway Stem Cell
- Esiason Hosts Charity Softball Games at Yankees Stadium
- New Report Helps Adolescents Transition to Adult Care
- Empire Challenge Photos Available Online
- Refi Rock Spring Fling ROCKS Statue of Liberty
- Support Gunnar Esiason and Jerry Cahill in the Run to Breathe
- LI Bests NYC in 16th Empire Challenge All-Star Game
- Irish Woman Receives Groundbreaking Lung Transplant
- Signaling Pathway Is 'Executive Software' of Airway Stem Cells, Researchers Find
- Changing Genetic ‘Red Light’ to Green Holds Promise for Treating Disease
- FDA Approves Infant Dosage for CREON
- Rare Diseases Often Caused by Mutations in Essential Genes, Researchers Find
- Vertex to Expand Access to VX-770 for Patients with Critical Medical Need
- VX-770 Shows Positive and Lasting Results Throughout 48-Week Phase 3 Study
- Phase 2 Study of VX-770 and VX-809 Show Promising Results in Patients with Most Common Mutation
- Aradigm Gets FDA Orphan Drug Designation for Ciprofloxacin for Inhalation in Bronchiectasis
- HHS Reduces Insurance Premiums for Pre-Existing Condition Plan
- Jerry Cahill Inducted into CHSAA Hall of Fame
- NY Yankees Celebrity Softball Event to Benefit BEF
- Exercise: A CF Photo Essay
May- Drug Shortages Force Hospitals to Hunt for Substitutes
- CF Bacteria Could Help Combat Other Superbugs, Researchers Find
- Boomer and Carton to Guest Judge on 'Iron Chef America'
- UnitedHealthcare to Present Annual Empire Challenge
- New CF Wind Sprint Demonstrates How to Use the PowerLung
- WCBS-TV to Air PSA on CF Run to Breathe
- Researchers Identify Genes Linked to Worsening of CF
- U.S. News Releases 2011-12 Rankings of Best Children's Hospitals
- Abbott Test Assists in CF Screening
- New Podcast Discusses Life Before and After a Double-Lung Transplant
- Run for a Cause: Set - and Achieve - an Exercise Goal
- What's Your CF IQ?
- Toronto Student Finds CF Treatment by 'Hacking' Supercomputer
- Jerry Cahill Awarded Ellis Island Medal of Honor
- New Podcast Focuses on Adulthood With CF
- WBUR Special Report on VX-770
- New CF Wind Sprint Demonstrates Cardio Exercises
- Simple Exercise Improves Lung Function in Children with Cystic Fibrosis
- NYRR Opens Registration for Boomer's Cystic Fibrosis Run to Breathe
- CF Awareness Month 2011: The Power of Exercise
April- New CF Wind Sprint on Stretching
- Drug Combo for CF Lung Infections Could Address Antibiotic Resistance, Researchers Say
- FDA Rejects Liprotamase, Calls for More Studies
- Boomer Urges Donor Registrations in New York State Campaign
- New Podcast on Getting Motivated Before and After a Lung Transplant
- CF Patients Fight Grim Prospect with Bright Outlook
- CFF Expands Vertex Partnership
- New Molecular Structures Could Fight Infectious Diseases Better than Conventional Antibiotics
- Clinical Trials Legislation Takes Effect
March- Pittsburgh Hospital Leads in Lung Transplants
- Vertex Press Release on VX-770 Phase 3 Clinical Trial
- VX-770 Trial: 'Profound Improvement' in Kids
- New Wind Sprint on Core Exercises
- Pig Model Of CF Improves Understanding Of Disease
- Researchers Explore 4-D Imaging of CF Lungs
- BEF Scholarship Apps Due 3/15
- FDA Panel Not Sold on Personal Genetic Testing
- New Team Boomer Video: Why Do You Run?
February- VX-770 Achieves Positive Results in Phase 3 Clinical Trial, Vertex Announces
- Axcan Pharma CEO Explains Impact of Axcan-Eurand Merger
January
2010
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December
- Phase 3 Trial of Ataluren Expected to be Completed in 2011
- Denufosol Phase 3 Trial Published in Leading Medical Journal
- TCU Senior Wins 2010 Rimington Trophy
- Samsung, Sears and BEF Team Up to Tackle Cystic Fibrosis
November- New England Journal of Medicine Publishes Phase 2 Study of VX-770 for Treating Cause of CF
- Phase 2 Results Show Ataluren Restores Production of Functional CFTR Protein
- Cystic Fibrosis Gene Typo is a Double Whammy
- Growth Defects in CF May Start Before Birth, Study Finds
- Discovery Labs KL4 Surfactant Granted Orphan Drug Designation for the Treatment of CF
October- Pharmaxis Announces Positive Combined Phase 3 CF Trial Results
- Gilead's Cayston Beats Tobramycin Inhalation Solution in Six-Month Head-to-Head Study
- Analysis Shows TOBI Associated With Reduced Mortality in CF Patients With Common Lung Infection
- Vertex Pharmaceuticals Clinical Trial to Evaluate Combo of VX-770 and VX-809 Targeting CFTR Protein
- Impaired Metabolism in CF Lung Epithelial Cells Revealed by Metabolic Analysis
- Bacteria Identified as New Foe for CF Patients
- Human Growth Hormone Shows Promise in Treating Cystic Fibrosis Symptoms
September- University of Texas Researcher Receives $2.1 Million Grant to Focus on Drug Delivery to Lungs
- 'Improving Access to Clinical Trials Act' Passes U.S. House; Heads to President for Signatur
- PTC Therapeutics Awarded $1.6 Million FDA Grant to Support Ongoing Phase 3 Study of Ataluren
- iTunes Offers New App for Jerry Cahill's CF Podcasts
- Researchers: Vitamin D May Treat, Prevent Allergic Reaction to Mold in CF Patients
August- Luminex Announces Commercial Launch of New CF Genetic Screening Test
- BEF Awards $10,000 Scholarships to Two Student-Athletes
- Out of Grief Sprouts a Life-Saving Legacy
- 'Improving Access to Clinical Trials Act' Passes U.S. Senate in Victory for CF Advocates
July- New CF Drugs Bring Hope; More Survive Into Adulthood, But They Face New Challenges
- Eurand Reports Further Positive Data from Pancreatic Insufficiency Drug Study
- Cincinnati Children's Cited in US News Report As a 'Best' Hospital for CF Kids
- Limit Antibiotics for CF Exacerbations to 10 Days, Registry Study Says
- Lilly to Acquire Alnara; Company's Liprotamase Currently Under FDA Review
June- New Study Examines Impact of MRSA on CF
- Researchers Still Expect Genetic Mapping Project Will Lead to New Drugs
- FDA Extends Availability of Pancreatic Enzyme Therapy Pancrease Until Mid-July
- Pancreatic Enzyme Therapy Pancrease to Have Limited Availability, CFF Says
May- Data Suggest Denufosol May Hold Promise as an Early Intervention Treatment for CF
- Mpex Presents Positive Phase 2 Clinical Trial Results of Aeroquin Treatment in CF
- Aradigm Receives FDA Clearance for Clinical Trial of Inhaled Liposomal Ciprofloxacin
- Azithromycin Doesn't Always Help Lungs in CF Patients Without P. Aeruginosa, Study Finds
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Boomer Esiason Continues his Fight Against CF
06/15/2013
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Updates on Sarah Murnaghan and Pediatric Lung Transplant
06/11/2013
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Jerry Cahill presented with the Jacoby Angel Award
06/10/2013
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Boomer: Sarah’s Transplant is a miracle
06/08/2013
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The Power of Two: The Journey of Twin Sisters with CF
05/10/2013
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May is CF Awareness Month!
04/30/2013
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Mamaroneck Flowers and BEF Team Up
04/30/2013
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Gunnar Esiason: The Face Behind BEF
04/30/2013
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Phase 2 Study of Kalydeco and VX-661 Shows Promising Increases in Lung Function
04/23/2013
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One Year Post Transplant: Where is Jerry today?
04/17/2013
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New Infection Prevention and Control Policy from the CF Foundation
04/12/2013
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The CF Foundation Expresses Concern About Proposed Disability Benefit Changes
04/11/2013
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FDA Approves New Powder form of Novartis TOBI
03/26/2013
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Everything You Need to Know about You Cannot Fail
03/20/2013
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Vertex Announces Initiation of a Phase 3 Study for CF Patients with the F508del Mutation
02/27/2013Vertex researchers will conduct two 24-week Phase 3 studies on the affect of VX-809 and ivacaftor in CF patients with two copies of the F508del mutation.
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30 Year Old Man with Cystic Fibrosis Qualifies for the Boston Marathon
02/20/2013Recently, a young man with cystic fibrosis achieved something many never will: a qualifying time to the Boston Marathon.
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Congratulations to the 2013 Sacks for CF Scholarship Recipients
02/04/2013This year, 30 scholarships totaling $180,000 were given to deserving students who have cystic fibrosis.
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In the Wake of the Storm
12/13/2012In the wake of Hurricane Sandy, Xenith pledged to donate a portion of its online helmet sales to recovery services.
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Alabama’s Barrett Jones Named Recipient of the 2012 Rimington Trophy
12/07/2012Barrett Jones, center at the University of Alabama, was Named the 2012 Recipient of the Rimington Trophy.
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2012 Champions for Charity
11/27/2012The Champions for Charity event held at over 70 Americana Manhasset and Wheatley Plaza stores benefits over 90 non profits, including the Boomer Esiason Foundation.
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Jerry Cahill, 56-Year Old CF Survivor and Athlete, Featured on CBS’s Courage in Sports
11/07/2012Double lung transplant recipient and cystic fibrosis survivor featured on the 23rd Annual CBS Courage in Sports special on Sunday, November 11th.
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NHLBI has Launched a Program on Early Cystic Fibrosis Lung Disease
10/19/2012The NHLBI has launched a program that focuses on infants and young children who have cystic fibrosis that could provide a road map for prevention.
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Team Boomer’s First Year in the Bank of America Chicago Marathon was a Success
10/12/2012Team Boomer members brought the fight against cystic fibrosis to the streets of Chicago for the 2012 Bank of America Chicago Marathon.
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CFF and Walgreens Team Up
10/03/2012The Cystic Fibrosis Foundation and Walgreens has formed an alliance that will greatly benefit the CF community.
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A Heroic Group of Women Triumphing over Cystic Fibrosis
10/01/2012The New York Daily News shares an inspirational story about local “cysters.”
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Congratulations to the 2012 2nd Quarter Recipients of the BEF Scholarship
09/26/2012Six outstanding students have been chosen as the 2012 winners of the 2nd quarter BEF $1,000 scholarships.
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Archbishop John Hughes Council #481 to host a Disco Night BEF Fundraiser
09/24/2012Dance all night to hits from the 70’s and 80’s to benefit BEF and Team Boomer thanks to Archbishop John Hughes Council #481 DISCO NIGHT 2012.
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Boomer’s Still Battling Cystic Fibrosis
09/19/2012SUCCESS Magazine features Boomer Esiason, a founder the Boomer Esiason Foundation, as they look back at the creation of the foundation and the reason behind it.
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Congratulations to the 2012 Recipients of the Scholarship of the Arts
09/10/2012Anna Johnson, Abby Lewis, and Davis Isaaks have been award a $1,000 scholarship for their excellence in creativity and art.
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FDA Advisory Committee supports the use of Novartis inhalation powder, Tobramycin
09/06/2012The Anti-Infective Drugs Advisory Committee to the US Food and Drug Administration voted today in favor of the use of TIP by cystic fibrosis patients.
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Congratulations to Courtney Robinson, 2012 Rimington Trophy Scholarship Winner
09/06/2012Courtney Robinson has been named the recipient of the $2,000 2012 Rimington Trophy Scholarship.
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Sabrina Smith Walker, a Club CF Participant, is In the News
08/28/2012Sabrina Smith Walker, a 26 year old CF patient and Club CF participant, shares her journey to completing a 15.8 mile Lost Lake Run.
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Congratulations Emily Nickels and Clayton Roll, 2012 Exercise for Life Scholarship Winners
08/27/2012Clayton Roll and Emily Nickels have been named the recipients of the $10,000 Exercise for Life Scholarship.
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Congratulations to the 2012 Rosemary Quigley Scholarship Recipients!
08/20/2012Tess Dunn, Kiersten Cash, and Thomas Kerekes have been awarded scholarships by the Quigley family.
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Gene Network Restores Cystic Fibrosis Protein Function
08/10/2012Researchers at the University of Iowa Carver College of Medicine have discovered a genetic process that can restore function to a defective protein, the most common cause of cystic fibrosis.
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Congratulations to Olivia Burke, the most recent recipient of the Bonnie Strangio Scholarship
08/10/2012Olivia Burke, future student of Heidelberg University, was recently awarded the Bonnie Strangio Education Scholarship in the amount of $2,500 for her excellence in the classroom and her passion for success.
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Additions have been made to the You Cannot Fail store!
08/10/2012Visit our updated store to find fun, new You Cannot Fail baseball hats as well as other YCF apparel options.
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Vertex Receives European Approval for KALYDECO™
07/27/2012
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Jerry Cahill featured in Everyday Health
07/26/2012An active lifestyle helped 56-year-old Jerry Cahill stave off the effects of cystic fibrosis. Then doctors told him he needed a lung transplant.
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Team Boomer Website
07/23/2012BEF is excited to announce the fall launch of the new Team Boomer website.
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Boomer’s Cystic Fibrosis Run to Breathe
07/23/2012The second annual Run to Breathe in Central Park was a huge success, selling out 7,000 spots with close to 5 ,000 runners in attendance the morning of the race.
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3 Months Post-Transplant, Jerry Cahill will Run to Breathe
07/20/2012Jerry Cahill has lived with cystic fibrosis, an incurable genetic disease, for 56 years - 20 years past the median age. Three months ago, he underwent a double lung transplant and on Saturday, July 21, will be running a 10K in Central Park.
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Barron helps kids with Cystic Fibrosis Climb the “Poor Man’s” Everest
07/09/2012Professional surfing legend and accomplished artist, Shawn "Barney" Barron, calls the sport of surfing "conquering the poor man's Everest" and is currently using his art and his position as a surf rep for Volcom to introduce children who suffer from cystic fibrosis to the sport.
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Final Results from Phase 2 Combination Study of Kalydeco and VX-809 Show Significant Improvements
06/29/2012Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) announced today final data from a Phase 2 study of VX-809 and KALYDECO™ (ivacaftor) that showed statistically significant improvements in lung function among adults with cystic fibrosis (CF) who have two copies (homozygous) of the most common mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene, F508del.
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Legislation to Expedite Approval of Rare-Disease Drugs Moving Through Congress
06/22/2012Legislation that will help expedite the approval of safe and effective new rare-disease drugs is making its way through Congress, and advocates hope it soon will be signed by President Obama.
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BEF Releases New Wind Sprint on Working Out While Traveling
06/20/2012The Boomer Esiason Foundation has released Episode 26 of the CF Wind Sprint series, which discusses how to keep up with your exercise regimen while traveling.
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PTC Therapeutics Announces Promising Results from Phase 3 Trial of Ataluren
06/08/2012PTC Therapeutics today announced the results from a Phase 3 study of ataluren that demonstrated positive trends in lung function and the rate of pulmonary exacerbations.
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BEF Announces ‘You Cannot Fail… You are the Hero of Your Own Story’ Scholarship for CF Students
06/04/2012The Boomer Esiason Foundation has established the Jerry Cahill You Cannot Fail... You are the Hero of Your Own Story Scholarship to honor exceptional student-athletes with cystic fibrosis who, like Jerry, don’t let the disease get in their way of living lives filled with purpose, passion, optimism and courage.
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June Deadlines Near for Five CF Scholarships
06/04/2012The Boomer Esiason Foundation encourages outstanding students with cystic fibrosis to apply for five CF scholarships with deadlines in June.
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CFChef Announces New Recipe Contests for 2012
06/01/2012CFChef, an online nutrition destination developed to help meet the unique nutritional needs of people living with cystic fibrosis, has announced four themed recipe contests for 2012, with the first deadlines coming up on June 21.
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A Letter From Boomer: Causes for Celebration
05/31/2012Boomer reflects on how much brighter the future for the cystic fibrosis community is today than it was when his son was diagnosed nearly two decades ago.
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New Podcast: Bobby Bebber on Overcoming All Obstacles with CF
05/30/2012A new podcast from the Boomer Esiason Foundation features an interview with Bobby Bebber, a 28-year-old who has undergone three liver transplants and a kidney transplant but continues to be living, breathing and succeeding with CF.
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Progress Made on Cayston® Supply Challenges, CFF Reports
05/24/2012Gilead Sciences Inc. says it has made progress resolving a shortage of its inhaled antibiotic Cayston® that began earlier this year.
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Concentrated Saline Therapy Not Effective in Young Children with CF, Study Finds
05/23/2012Inhaling concentrated saline mist does not reduce how often infants and young children with CF need antibiotics for respiratory symptoms, according to findings from a recent clinical trial.
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FDA Approves New Drug Application for Digestive Care’s PERTZYE
05/23/2012Digestive Care, Inc. has received U.S. Food and Drug Administration approval of its new drug application for PERTZYE™, developed for the treatment of exocrine pancreatic insufficiency due to CF or other conditions.
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Double-Lung Transplant Has ‘Humbled Me Dramatically,’ Cahill Says
05/22/2012Just over a month after his double-lung transplant, Jerry Cahill tells the complete story of his transplant journey, including how the experience has 'humbled' him.
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Online CF Quiz from Gilead Sciences Tests Knowledge, Supports BEF
05/21/2012How much do you know about cystic fibrosis? Test your knowledge with an online CF quiz from Gilead Sciences, and Gilead will make a donation to the Boomer Esiason Foundation and two other CF charities.
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BEF Expands Amazon Storefront to Include More ‘You Cannot Fail’ Merchandise
05/16/2012The Boomer Esiason Foundation has expanded its storefront on Amazon.com to include sports wristbands and paperweights from the popular You Cannot Fail: You Are the Hero of Your Own Story campaign.
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Second Annual NY Yankees Celebrity Softball Event to Benefit BEF
05/15/2012Tickets are on sale now for the second annual New York Yankees celebrity softball event that will benefit the Boomer Esiason Foundation and its fight against cystic fibrosis.
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Application Deadline for Scholarship of the Arts is May 16
05/09/2012Calling all CF artists! The May 16 application deadline for the Boomer Esiason Foundation's Scholarship of the Arts is coming up quickly, and we encourage all CF student-artists to apply.
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NYRR Opens Registration for 2012 Boomer’s CF Run to Breathe
05/08/2012The New York Road Runners have opened registration for the 2nd Annual Boomer's Cystic Fibrosis Run to Breathe. The 10K run-walk will be held July 21 in New York City's Central Park and is open to runners at all levels.
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Vertex Reports Promising Interim Results for Phase 2 Trial of Kalydeco and VX-809
05/07/2012Vertex Pharmaceuticals Inc. today announced promising interim results from a Phase 2 clinical trial of its cystic fibrosis drug Kalydeco™ and VX-809, a CF drug in development.
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Charity Navigator Awards BEF Second Consecutive Four-Star Rating
05/07/2012The Boomer Esiason Foundation has received its second consecutive four-star rating from Charity Navigator, an independent evalutator of U.S. philanthropic organizations.
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‘You Cannot Fail’ Book Now Available on Amazon.com
05/04/2012You Cannot Fail: You Are the Hero of Your Own Story — an inspirational book of personal reflections by Boomer Esiason Foundation Volunteer Jerry Cahill — now is available for sale on Amazon.com.
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Tickets on Sale Now for 2012 Refi Rock Spring Fling!
05/03/2012Tickets are on sale now for the Fourth Annual Refi Rock Spring Fling, to be held June 7 at the Central Park Zoo in New York City.
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Documentary on Eva Markvoort to Air May 3 on Oprah Winfrey Network
05/03/2012A documentary film on Eva Markvoort, a young Canadian woman who made headlines by blogging about her battle with CF and double-lung transplant, will make its U.S. television premiere on May 3.
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New Facebook Tool Allows Members to Share Organ Donor Status
05/02/2012Social network Facebook is allowing its 900 million users to share their organ donor status in an effort to spread awareness about the critical need for donated organs.
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Two Weeks Post-Transplant, Jerry Cahill Speaks Out on Organ Donation, CF Awareness Month
05/01/2012Jerry Cahill, who received a double-lung transplant in mid-April, shares his thoughts on organ donation, CF Awareness Month and his recently launched You Cannot Fail project.
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‘Donate Life Month’ Takes on New Meaning with Jerry Cahill Lung Transplant
04/23/2012This year's National Donate Life Month celebration took on new meaning on April 18 when the Boomer Esiason Foundation's Jerry Cahill underwent a double-lung transplant.
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New Website Offers Insight on Cystic Fibrosis Gene Mutations
04/20/2012A major international research effort has led to a new online resource that provides information about specific cystic fibrosis gene mutations to people with CF and their families, researchers, health professionals and the general public.
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New Wind Sprint: Club CF Is Valuable Online Resource for CF Community
04/16/2012Episode 25 of the CF Wind Sprint series focuses on Club CF, a website featuring stories about adults around the country who are living, breathing and succeeding with cystic fibrosis.
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Boston College Club Lacrosse Teams Compete to Fight CF
04/12/2012This weekend, the Boston College men’s and women’s club lacrosse teams will be facing off against the University of Pittsburgh and Northeastern University in a doubleheader to benefit cystic fibrosis.
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Maryland Football ‘Lift for Life’ Event to Support BEF and CF Community
04/09/2012The University of Maryland football team's Third Annual "Lift for Life" strength and conditioning competition will benefit the Boomer Esiason Foundation and the cystic fibrosis community.
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Atlantic Cup Sailing Race to Benefit BEF and CF Community
04/09/2012The Boomer Esiason Foundation is the official charitable partner of the 2012 Atlantic Cup, an annual sailing race that kicks off in Charleston, S.C., on May 11. Enter the Atlantic Cup sweepstakes for a chance to be on board a real race boat during the sprint leg in New York City.
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April 17 Deadline Approaches for CFCareForward Scholarship
04/03/2012Abbott has announced it will award two $20,000 scholarships to students with cystic fibrosis to celebrate the 20th anniversary of its CFCareForward Scholarship program.
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Celebrate ‘Donate Life Month’ By Registering to Become an Organ Donor
04/02/2012April is National Donate Life Month, a celebration honoring the generosity of organ, eye and tissue donors and their families and commemorating all transplant recipients in the United States.
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BEF Launches Online Shopping Cart Featuring ‘You Cannot Fail’ Merchandise
03/25/2012The Boomer Esiason Foundation has launched a new online shopping cart to make it easier for the cystic fibrosis community and others to purchase merchandise from the "You Cannot Fail: You Are the Hero of Your Own Story" campaign.
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New Podcast: Rick Lerz One Year After a Double-Lung Transplant
03/23/2012The latest cystic fibrosis podcast from the Boomer Esiason Foundation features an interview with 45-year-old Rick Lerz, one year after his double-lung transplant.
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Team Boomer Hits the Streets at NYC Half-Marathon
03/19/2012It was another great showing for Team Boomer at the 2012 New York City Half-Marathon on March 18. Check out the photos we snapped of our awesome runners in action!
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Hoops and Hops: Check Out the Photos
03/19/2012Check out the slideshow from the Second Annual Hoops and Hops for a Cure, held March 15 and organized by the BEF Young Professionals Committee.
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PMD Healthcare Giving Away Spiro PDs for World Asthma Day
03/16/2012PMD Healthcare is encouraging the cystic fibrosis community to enter a sweepstakes contest for a chance to win a personal spirometer.
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iTunes Offers App for CF Wind Sprint Video Series
03/16/2012The CF Wind Sprint series produced by the Boomer Esiason Foundation and BEF Volunteer Jerry Cahill now is available on your iPhone, iPad or iPod Touch.
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New CF Wind Sprint Looks at Transitioning from College to the Career World
03/05/2012Episode 24 of our CF Wind Sprint series examines transitioning from college to the career world with cystic fibrosis. It is the third in a three-part series on the major transitioning stages for people with CF.
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FDA Approves New Enzyme Therapy for People with CF
03/02/2012The FDA has approved Ultresa, a new pancreatic enzyme product used to help aid food digestion in people with cystic fibrosis.
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New CF Wind Sprint Looks at Transitioning from High School to College
02/22/2012Episode 23 of our CF Wind Sprint series examines transitioning from high school to college with cystic fibrosis. It is the second in a three-part series on the major transitioning stages for people with CF.
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Rimington Trophy Scholarship Established to Support Students with CF
02/20/2012The Boomer Esiason Foundation has established the Rimington Trophy Scholarship to recognize outstanding students who are living, breathing and succeeding with cystic fibrosis.
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Gilead Sciences Working to Address Supply Shortage of Cayston
02/15/2012Gilead Sciences says it is working to address "significant and unanticipated challenges manufacturing enough Cayston to meet demand in the United States."
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PMD Healthcare Launches Personal Spirometer To Monitor Lung Function
02/13/2012PMD Healthcare Inc. has launched the first and only personal spirometer that enables patients with lung diseases to easily and accurately monitor their lung function any time and anywhere.
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New CF Wind Sprint Looks at Transitioning from Pediatric to Adult CF Care
02/10/2012Episode 22 of the CF Wind Sprint series examines transitioning from pediatric to adult CF care. It is the first in a three-part series on the major transitions for people with CF.
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BEF Awards ‘Sacks for CF’ Scholarships to Outstanding Students with Cystic Fibrosis
02/08/2012The Boomer Esiason Foundation has awarded prestigious "Sacks for CF" academic scholarships to 30 outstanding students with cystic fibrosis.
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Sales of Team Boomer ‘Vintage’ Tees to Benefit Fight Against CF
02/01/2012Proceeds from sales of a vintage-style Team Boomer t-shirt, designed by clothing manufacturer Homage, will benefit the Boomer Esiason Foundation and the cystic fibrosis community.
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FDA Approves KALYDECO™; Vertex to Begin Shipments Immediately
01/31/2012Vertex Pharmaceuticals Inc. announced on January 31 that the FDA has approved KALYDECO™ (ivacaftor), the first medicine to treat the underlying cause of cystic fibrosis.
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Rimington Trophy Presented to ‘Unquestioned Leader’ of Michigan Football Team
01/27/2012The 2011 Rimington Trophy was formally awarded to the University of Michigan’s David Molk at the annual presentation event in mid-January. According to Michigan Sports Information Director Justin Dickens, Molk was "the unquestioned leader of our football team."
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New Podcast: Colleen Caul’s ‘Run for Roses’
01/09/2012The Boomer Esiason Foundation's latest video podcast traces Colleen Caul's "Run for Roses" — her 65-day running journey from St. Louis to New York City. Caul's project aims to boost awareness of cystic fibrosis, raises funds toward a cure, and share stories of the CF community.
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Vertex Planning Additional KALYDECO™ Clinical Trials in 2012
01/09/2012Vertex Pharmaceuticals is planning additional studies of KALYDECO™ in children with CF and in people with CF who have certain mutationsnot previously evaluated. Pending feedback from regulatory agencies, it plans to begin three studies in mid-2012.
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BEF Establishes Gunnar Esiason Scholarship Fund at Boston College
01/06/2012With Gunnar Esiason and his sister, Sydney, both attending Boston College, the Boomer Esiason Foundation has established a $10,000 scholarship to support the studies of a BC student.
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Boomer Esiason to Co-Host ‘Live! with Kelly’ Show on January 11
01/06/2012Our own Boomer Esiason will be Kelly Ripa's guest co-host on the January 11 "Live! With Kelly" television show.
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Rimington Trophy to be Presented to Michigan’s Molk on January 14
01/06/2012The 2011 Rimington Trophy will be awarded January 14 to University of Michigan senior David Molk. ESPN.com recently aired a touching profile of Molk, who lost his mother to cancer when he was in eighth grade.
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Help Moganko Meet the Muppets and Boost CF Awareness
01/04/2012Josh Mogren has launched a campaign using social media to introduce his puppet sidekick, Moganko, to meet the Muppets and, ultimately, raise awareness of cystic fibrosis via a collaborative public service announcement.
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What’s Your New Years Resolution? Want to Exercise More? Join Team Boomer!
01/02/2012Whether your New Year's resolution is running your first 10K, training for a triathlon or conquering a big-city marathon, Team Boomer has an event that will help you meet your fitness goals and support the fight against CF.
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Sydney Esiason Discusses Being a CF Sibling
12/27/2011The sibling relationship is a special one, and it is especially important in families living with cystic fibrosis. In a brief interview, 19-year-old Sydney Esiason shares some thoughts on being a CF sibling and how BEF is making a difference for all families with CF.
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7th Annual Berkeley College Charity Car Show Raises More Than $25,000 for BEF
12/22/2011Vintage and collector cars from across the tri-state area recently rolled into the parking lot of Berkeley Collegefor the 7th Annual Charity Car Show. A total of 345 cars were registered in the show, which raised more than $25,000 for the Boomer Esiason Foundation.
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Kalydeco (VX-770) Available to People with Critical Medical Need
12/21/2011According to the CF Foundation, an expanded access program for Kalydeco™ (VX-770) is now available at participating clinical sites for people with the G551D mutation who have highly limited lung function and may benefit from treatment.
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Mannitol Shown to Improve Lung Function When Added to Standard CF Therapy
12/16/2011Adding inhaled dry powder mannitol to standard CF therapy produced sustained improvement in lung function, according to a new study by Pharmaxis Ltd.
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FDA Grants Priority Review for KALYDECO™ from Vertex Pharmaceuticals
12/15/2011The FDA has granted a request by Vertex Pharmaceuticals for priority review of KALYDECO™, the first potential therapy to target the underlying cause of cystic fibrosis.
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New CF Wind Sprint Demonstrates Exercises with Kettlebells
12/14/2011The Boomer Esiason Foundation has released Episode 21 of the Cystic Fibrosis Wind Sprint Series, which demonstrates a series of exercises that can be done using equipment called kettlebells.
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Help Us Make a Difference in the Cystic Fibrosis Community
12/13/2011In recognition of our achievements over the past year, and in anticipation of the challenges we face in the year to come, please consider making an end-of-year donation.
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YOU CANNOT FAIL Book and Merchandise Available Online, Just In Time for Holiday Gift Giving
12/13/2011Three new products from the YOU CANNOT FAIL campaign - a hard cover book, t-shirts and wristbands - now are available for purchase online, just in time for holiday gift giving.
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Michigan’s David Molk Named Recipient of 2011 Rimington Trophy
12/09/2011University of Michigan senior David Molk has been named the recipient of the 2011 Rimington Trophy, an annual award named for BEF President Dave Rimington.
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New Podcast: Josh Mogren on Moving Forward After Losing a Sibling to CF
12/02/2011In the latest podcast from the Boomer Esiason Foundation, 32-year-old Josh Mogren discusses living with cystic fibrosis and cerebral palsy, and how he moved forward after losing his sister to CF.
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New Clues for Improving Antibiotics for Tolerant Bacteria
11/28/2011Scientific American magazine reviews two new research papers - recently published in the journal Science - showing how some bacteria are able to withstand antibiotic treatment.
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How CF-Related Diabetes Differs from Types 1 and 2
11/22/2011In addition to Type 1 and Type 2 diabetes, there is another variant of the disease: cystic fibrosis-related diabetes. It differs in some important ways from Type 1 and Type 2 diabetes and it requires different treatment methods.
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Genzyme and CFFT Announce Collaboration to Discover New CF Drugs
11/16/2011Genzyme and Cystic Fibrosis Foundation Therapeutics Inc. today announced a research agreement to support the discovery of new drugs to treat people with the most common mutation found in patients with CF, Delta F508.
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December 15 Deadline Approaching for BEF Academic Scholarship
11/16/2011BEF encourages college students with cystic fibrosis to get started on their application for the General Academic Scholarship. The next application deadline for this program is December 15.
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Boomer Esiason Foundation Unveils New Logo for Team Boomer Athletic Program
11/14/2011The Boomer Esiason Foundation has unveiled a new, powerful logo for its quickly growing Team Boomer athletic and fundraising program.
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Team Boomer Opens Registration for 2012 NYC Half-Marathon
11/09/2011Team Boomer, an official charity partner of the 2012 NYC Half-Marathon, is accepting applications for the March 18 event.
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Abbott Announces Winners of ‘CFChef Challenge’ Recipe Contest
11/08/2011Abbott has announced the winners of its recipe contest to launch CFChef, an online resource developed to help meet the unique nutritional needs of people living with cystic fibrosis.
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Team Boomer Marathoners Raise More Than $500,000 to Support CF Community
11/07/2011It was another successful ING New York City Marathon, as 115 Team Boomer marathoners brought in more than $500,000 to support cystic fibrosis research and the CF community.
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CBS New York Features Team Boomer in Marathon Coverage
11/05/2011CBS New York featured Team Boomer and the Boomer Esiason Foundation in its coverage of the November 6 New York City Marathon.
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New York Times Article Features Team Boomer Marathoner
11/04/2011Kevin Dwyer, who has cystic fibrosis and will run for Team Boomer in the NYC marathon on Sunday, was profiled in a recent New York Times feature story.
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BEF Launches YOU CANNOT FAIL Campaign with Sale of Inspirational Book by Jerry Cahill
11/04/2011The Boomer Esiason Foundation today announced the sale of limited edition copies of “YOU CANNOT FAIL: You Are the Hero of Your Own Story,” an inspirational book of personal reflections by BEF Volunteer Jerry Cahill.
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Boomer’s Team Triumphs in Fordham Basketball Scrimmage
11/03/2011The Fordham basketball players coached by Boomer Esiason bested the team coached by his WFAN co-host Craig Carton in an intersquad scrimmage that benefited the Boomer Esiason Foundation.
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New England Journal of Medicine Features Study of Kalydeco (VX-770)
11/02/2011The New England Journal of Medicine features a study this week about a Phase 3 clinical trial of Kalydeco™ (VX-770), a potential CF therapy undergoing review for approval by the U.S. Food and Drug Administration.
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Check Out the Photos from the 2011 Refi Rock Halloween Event
10/31/2011The 2011 Refi Rock Halloween event drew more than 800 partygoers. Check out the slideshow from the event!
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Thirty Outstanding Students with CF to Receive ‘Sacks for CF’ Scholarship
10/28/2011The Boomer Esiason Foundation encourages college students with cystic fibrosis to get started on their application for the exciting Sacks for CF Scholarship. The application deadline for the program is January 13, 2012.
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Vertex Applies to FDA for Priority Review, Approval of VX-770
10/19/2011Vertex Pharmaceuticals today submitted a new drug application to the FDA for KALYDECO™ (VX-770). If approved, the drug will be the first treatment to target the underlying cause of cystic fibrosis.
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New Cystic Fibrosis Wind Sprint Demonstrates Reaching the Back with a Percussor
10/19/2011The Boomer Esiason Foundation has released Episode 20 of the CF Wind Sprint series: Using a Self-Administrator with a Percussor.
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Team Boomer Marathoner Qualifies for 2012 Olympic Trials
10/17/2011A Team Boomer athlete has qualified for the 2012 Olympic Women's Marathon Trials.
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Boomer Esiason to Host CF Education Event in Philadelphia
10/12/2011Members of the cystic fibrosis community in the Philadelphia area are invited to join Boomer Esiason for "Chalk Talk: CF Education Event" on Monday, November 7.
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NYRR Highlights Team Boomer Marathoner with CF
10/12/2011The New York Road Runners have posted a story on their website about a Team Boomer athlete with CF who is running in the ING New York City Marathon on November 6.
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Agile Sciences Gets NIH Grant to Study Treatment for Lung Infections
10/10/2011The National Institutes of Health has awarded Agile Sciences a grant to evaluate the efficacy of anti-biofilm molecules for treating lung infections of cystic fibrosis patients.
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FDA Requests Additional Study of Arikace®, Insmed Says
10/10/2011Insmed Inc.today announced that it has been notified by the FDA that it is continuing the clinical hold previously placed on Insmed's phase 3 clinical trials for ARIKACE® in CF patients with Pseudomonas lung infections.
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New Book on Ironman Triathletes Highlights Athlete with CF
09/29/2011A new book profiling six Ironman triathletes features Scott Johnson, who has cystic fibrosis.
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New Podcast: Marc Smolowitz, Director of ‘The Power of Two’
09/27/2011In our latest podcast, director Marc Smolowitz discusses how “The Power of Two” documentary film is raising awareness of cystic fibrosis and organ donation.
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Fishing and Golf Event in Mexico to Benefit CF, MS
09/21/2011The CF & MS Foundation's upcoming sport fishing and golf tournament in Cabo San Lucas will support the cystic fibrosis and multiple sclerosis communities.
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Nick News Special Focuses on Organ Donation, Features Teen with CF
09/16/2011Nick News with Linda Ellerbee hears from kids and families who have been affected by organ donation in the half-hour special, "A Gift of Life," premiering September 18 on Nickelodeon.
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Tickets on Sale for Annual Refi Rock Halloween Party
09/15/2011Tickets are on sale now for the Fourth Annual Refi Rock Halloween Party with Boomer and Carton! This popular event, hosted by the BEF Young Professionals, brings in funds in support of Team Boomer and other programs supporting the CF community.
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Troupe with CF Dancer Finishes in Second Place on America’s Got Talent
09/15/2011The Boomer Esiason Foundation congratulates the Rocky Mountain Silhouettes — and team member Kelsie, who has cystic fibrosis — on their second-place finish in the popular "America's Got Talent" television competition.
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CF Chef Recipe Contest Deadline is September 28
09/14/2011The deadline for Abbott's CFChef Challenge recipe contest - open to anyone in the cystic fibrosis community - is September 28.
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Boomer and Carton Host Special Guests at BGC Charity Day Broadcast
09/12/2011Boomer Esiason and Craig Carton took their drive-time sports talk radio show to downtown Manhattan this morning, broadcasting live at inter-dealer broker BGC Partners Inc.'s annual BGC Charity Day.
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New Podcast Features Jerry Cahill on Getting Involved in the CF Community
09/12/2011Recently, we tagged along with Jerry Cahill as he spoke to packed house at Children’s Hospital of Wisconsin. In a new podcast, Jerry talks about his no-nonsense approach to managing CF on a daily basis.
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Boomer Esiason Remembers 9/11 in NFL Video Interview
09/09/2011In a new video interview for the NFL, Boomer recalls the events of September 11, 2001, and discusses the role football played in helping a grieving country heal.
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Dancer With CF Part of Troupe in Finals of 'America's Got Talent'
09/08/2011An exciting performance troupe comprised of young dancers, actors and tumblers — including one with cystic fibrosis — last night made it into the finals of the popular television show "America's Got Talent."
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Sales of Vineyard Vines Tie and Tote Bag Benefit BEF
09/05/2011We have teamed up with apparel company Vineyard Vines to create a collection of limited-edition BEF ties and totes. All proceeds from sales of this collection during the month of September benefit the Foundation!
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BEF Board Member Timothy O’Brien Remembered as 9/11 Anniversary Nears
09/01/2011In the attack on the World Trade Center on September 11, 2001, the Boomer Esiason Foundation lost not only its offices, which had been graciously supplied by Cantor Fitzgerald, but also a dear friend and Board member, Timothy O'Brien.
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2011 Exercise for Life Scholarship Recipients Named by Boomer Esiason Foundation
08/24/2011The Boomer Esiason Foundation congratulates the exceptional student-athletes with cystic fibrosis who recently were selected by the Foundation to receive the prestigious Exercise for Life Scholarship for the coming school year.
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'Power Of Two' Movie Hits Oscar Qualifying Circuit; Documentary Features Sisters With CF
08/22/2011“The Power of Two,” a feature documentary on twin sisters with cystic fibrosis, has been selected for a prestigious Oscar-qualifying documentary showcase and is kicking off a full
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Team Boomer Issues Last Call for Guaranteed Spots in the 2011 ING NYC Marathon
08/17/2011Team Boomer has only a handful of guaranteed entries left for the 2011 ING New York City Marathon. Athletes interested in running for a cause should contact us as soon as possible to secure their registration.
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Save the Date: 2012 Boomer's CF Run to Breathe
08/15/2011Mark your calendar for the Second Annual Boomer's CF Run to Breathe: Saturday, July 7, 2012. The 10K run/walk, organized by Team Boomer and the New York Road Runners, will be held in NYC's Central Park.
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Pulmatrix Invests in Clinical Programs in Cystic Fibrosis and COPD
08/15/2011Biotech company Pulmatrix has decided to focus its efforts on PUR118, the company's lead clinical drug candidate for cystic fibrosis and chronic obstructive pulmonary disease.
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BEF Releases Video Recapping Boomer's CF Run to Breathe
08/12/2011BEF has released a video recapping Boomer's CF Run to Breathe, the Foundation's first-ever 10K run. The video chronicles this inspirational event, held in July in Central Park.
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2011 CF Scholarship Recipients Named by Boomer Esiason Foundation
08/11/2011Congratulations to the exceptional students with cystic fibrosis who recently were selected to receive scholarships for the coming school year. The Foundation awards more than $250,000 in scholarships each year.
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Insmed Announces Clinical Hold on ARIKACE® Phase 3 Clinical Trials
08/05/2011The FDA has placed a clinical hold on phase 3 clinical trials for ARIKACE® in cystic fibrosis patients with Pseudomonas lung infections.
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New York Yankees Present BEF with Proceeds from Softball Event
08/05/2011The New York Yankees recently presented the Boomer Esiason Foundation with the proceeds raised at the Bombers-Boomer-Broadway Softball Classic.
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New CF Wind Sprint Demonstrates Simple Exercises for the Legs
08/03/2011The Boomer Esiason Foundation has released Episode 19 of the CF Wind Sprint Series: Exercises for the Legs. CF Wind Sprints is a series of brief videos addressing a variety of topics relevant to living with cystic fibrosis.
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CF Foundation Kicks Off 'Make Every Breath Count' Campaign
08/01/2011Volunteers from all over the country will meet with their elected officials in their hometowns this summer as part of Make Every Breath Count, the Cystic Fibrosis Foundation’s annual national advocacy campaign.
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National Minority Donor Awareness Day Marks Fifteenth Anniversary on August 1
08/01/2011August 1 marks the fifteenth anniversary of National Minority Donor Awareness Day, set aside to call attention to the critical need for members of the minority communities to register as organ and tissue donors.
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Teen with CF Educates Multicultural Populations About Organ Donation and Coping with Serious Illness
08/01/2011Seventeen-year-old Tyler Nelson, who lives with CF and is waiting for lung and liver transplants, has written a free e-book to promote organ donation and to help teens and young adults cope with serious illness.
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Vertex Plans to Submit New Drug Application for VX-770 to FDA in October
07/29/2011Vertex Pharmaceuticals Inc. said it is on track to submit in October a new drug application for VX-770, a promising CF therapy.
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Most Parents Unaware of Medical Research Opportunities for Their Kids
07/29/2011A poll by the University of Michigan found that 84 percent of parents say they don't know about opportunities for their children to participate in medical research.
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Changes in Lung Stem Cells May Contribute to CF Progression
07/29/2011Researchers at the University of Iowa have discovered that in CF patients, the airway glands are depleted of a specific population of airway stem cells that participate in airway repair following injury.
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Electromed Awards Jerry Cahill First Annual Distinguished Service Award
07/27/2011BEF Volunteer Jerry Cahill has received the first annual Distinguished Service Award from Electromed, Inc., maker of the SmartVest® Airway Clearance System.
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New Podcast Discusses Organizing CF Medical Information and Being Your Own Patient Advocate
07/27/2011The Boomer Esiason Foundation has posted a new podcast featuring Jessica Link, 25, who discusses how and why to organize your medical information, and why it's important to be your own patient advocate.
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Battle of the Bugs: Pseudomonas Breaches Cell Wall of Rival Bacteria Without Hurting Itself
07/20/2011Microbiologists have uncovered a sneaky trick by the bacterium Pseudomonas aeruginosa to oust rivals. Its means of attack helps it survive in the outside environment and may even help it cause infection.
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Bacteria Use Batman-Like Grappling Hooks to 'Slingshot' on Surfaces, Researchers Find
07/19/2011UCLA researchers learn more about how bacteria move across surfaces prior to forming multicellular bacterial biofilms.
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CF Chef Recipe Contest and Online Nutrition Program Launched by Abbott
07/18/2011To kick off its new CFChef online nutrition resource, Abbott is hosting the "CFChef Challenge" recipe contest, with our own Boomer Esiason as one of the judges.
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New Invasive Diagnostic Procedure Seems to Be No Advantage Over Current Standard Procedure
07/15/2011A study published in the Journal of the American Medical Association says treatment based on a new invasive diagnostic procedure for treating CF in infants did not have a lower prevalence of lung-damaging infection or structural lung injury at age five.
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FDA Approves 25,000 Lipase-Unit Strength of ZENPEP®
07/14/2011Aptalis Pharma announced that the FDA has approved a new strength of ZENPEP® (pancrelipase) Delayed-Release Capsules for exocrine pancreatic insufficiency.
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Results and Photos from the CF Run to Breathe
07/11/2011The results are in and the photos have been uploaded! Check out the wrap-up from the inaugural Boomer's CF Run to Breathe.
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Thousands Participate in CF Run to Breathe
07/11/2011Thousands of people turned out for the first-ever Boomer's CF Run to Breathe in Central Park. See the coverage from CBS 2 in New York.
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BEF President Dave Rimington Featured on ESPN.com
07/06/2011ESPN.com's Big Ten Blog recently featured an interview with BEF President Dave Rimington.
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New Podcast Discusses Being a CF Parent
07/05/2011The Boomer Esiason Foundation has posted a new audio podcast featuring Megan Mollahan, a parent in New York who has two children with cystic fibrosis.
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The Summer's Hottest Party: Boomer and Carton on Fire Island
07/04/2011Boomer Esiason and Craig Carton will bartend at a festive summer party on Fire Island, raising money to support programs for the CF community.
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Civilian Military Combine to Benefit BEF
07/01/2011The Civilian Military Combine – the ultimate test of strength, endurance and agility – will challenge some of the world's most fit athletes while providing support to BEF.
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New CF Wind Sprint Demonstrates Simple Upper Body Exercises
06/29/2011The Boomer Esiason Foundation has released Episode 18 of the CF Wind Sprint Series: Upper Body Exercises.
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NY Yankees Fundraiser: Check Out the Photos!
06/29/2011The first Bombers-Boomer-Broadway Softball Classic combined fun in the sun with some serious fundraising. Check out our photo slideshow from this fantastic event!
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Researchers Discover New Airway Stem Cell
06/28/2011Researchers at UCLA have identified a new stem cell that participates in the repair of the large airways of the lungs, which play a vital role in protecting the body from infection.
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Esiason Hosts Charity Softball Games at Yankees Stadium
06/27/2011Boomer Esiason estimated his foundation raised upward of $30,000 today at Yankee Stadium, where he hosted the Bombers Boomer Broadway Softball Classic.
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New Report Helps Adolescents Transition to Adult Care
06/27/2011A new clinical report provides detailed guidance to pediatricians, family physicians, and internists to support all adolescents, including those with special health care needs, as they transition to an adult model of health care.
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Empire Challenge Photos Available Online
06/27/2011Photos from the 16th Annual UnitedHealthcare Empire Challenge now are available online. Check out the Empire Challenge slideshow, view and order prints, and share them with your friends.
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Refi Rock Spring Fling ROCKS Statue of Liberty
06/24/2011The Third Annual Refi Rock Spring Fling ROCKED the Statue of Liberty earlier this month! Check out the video and slideshow from the event.
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Support Gunnar Esiason and Jerry Cahill in the Run to Breathe
06/24/2011BEF's own Gunnar Esiason and Jerry Cahill are preparing to participate in the inaugural Boomer's CF Run to Breathe, showing that exercise really does make a difference for people with CF, no matter what their age.
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LI Bests NYC in 16th Empire Challenge All-Star Game
06/22/2011In a thrilling contest that pitted the best high school football players from Long Island against their counterparts from New York City, the Long Islanders earned a 17-14 victory Tuesday night in the 16th Annual UnitedHealthcare Empire Challenge All-Star Game.
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Irish Woman Receives Groundbreaking Lung Transplant
06/17/2011A young Irish woman made history twice by being the first patient to have a lung transplant while suffering from multi-resistant Aspergillus, a common airborne fungus, and multiple fungal balls in her old lungs.
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Signaling Pathway Is 'Executive Software' of Airway Stem Cells, Researchers Find
06/16/2011Researchers at Duke University Medical Center have made new discoveries about mouse basal cells that line airways which could help provide new therapies for either blocked or thinned airways.
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Changing Genetic ‘Red Light’ to Green Holds Promise for Treating Disease
06/15/2011Scientists may have discovered an entirely new way to change the genetic code. The findings may ultimately help researchers alter the course of devastating genetic disorders, such as cystic fibrosis.
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FDA Approves Infant Dosage for CREON
06/14/2011The FDA has approved an infant-specific dose of Abbott's CREON® (pancrelipase) Delayed-Release Capsules to treat exocrine pancreatic insufficiency due to cystic fibrosis.
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Rare Diseases Often Caused by Mutations in Essential Genes, Researchers Find
06/13/2011Mutations in genes essential to survival are behind so-called orphan diseases, explaining in part why these diseases are rare and often deadly, according to a study appearing in The American Journal of Human Genetics.
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Vertex to Expand Access to VX-770 for Patients with Critical Medical Need
06/10/2011Vertex Pharmaceuticals announced a plan to provide VX-770, a cystic fibrosis medicine in development, to people with the G551D mutation who are in critical medical need and may benefit from treatment prior to potential approval of the drug from the U.S. Food and Drug Administration.
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VX-770 Shows Positive and Lasting Results Throughout 48-Week Phase 3 Study
06/10/2011Vertex Pharmaceuticals reported positive final results of a Phase 3 clinical trial of VX-770, a CF medicine in development that targets the underlying cause of the disease.
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Phase 2 Study of VX-770 and VX-809 Show Promising Results in Patients with Most Common Mutation
06/09/2011Vertex Pharmaceuticals announced promising results from a Phase 2 study evaluating combinations of VX-770 and VX-809, potential medicines designed to treat the defective protein that causes cystic fibrosis.
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Aradigm Gets FDA Orphan Drug Designation for Ciprofloxacin for Inhalation in Bronchiectasis
06/06/2011Aradigm Corp. has received orphan drug designation from the FDA for ciprofloxacin for inhalation for the management of bronchiectasis.
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HHS Reduces Insurance Premiums for Pre-Existing Condition Plan
06/03/2011The U.S. Department of Health and Human Services recently announced new steps to reduce premiums and make it easier for Americans to enroll in the Pre-Existing Condition Insurance Plan.
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Jerry Cahill Inducted into CHSAA Hall of Fame
06/03/2011Longtime Boomer Esiason Foundation volunteer Jerry Cahill last night was inducted into the Catholic High School Athletic Association Hall of Fame for his contributions as a pole vault coach at Iona Preparatory School.
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NY Yankees Celebrity Softball Event to Benefit BEF
06/03/2011Tickets are on sale now for an exclusive June 27 New York Yankees celebrity softball event that will benefit the Boomer Esiason Foundation and its fight against cystic fibrosis.
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Exercise: A CF Photo Essay
06/01/2011Cystic fibrosis families believe in the power of exercise. Here's an inspiring collection of photos showing their kids engaging in a variety of sports and other activities.
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Drug Shortages Force Hospitals to Hunt for Substitutes
05/30/2011A growing shortage of medications for a host of illnesses — including cystic fibrosis — has hospitals scrambling for substitutes to avoid patient harm, and sometimes even delaying treatment.
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CF Bacteria Could Help Combat Other Superbugs, Researchers Find
05/28/2011A bacteria which infects people with cystic fibrosis could help combat other antibiotic-resistant microbes, according to a team from Cardiff and Warwick Universities in Great Britain.
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Boomer and Carton to Guest Judge on 'Iron Chef America'
05/27/2011WFAN’s morning drive duo of Boomer Esiason and Craig Carton will have to switch gears — from debating the merits of the Mets to the deliciousness of dishes — for their appearance this Sunday, May 29, on the Food Network’s “Iron Chef America.”
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UnitedHealthcare to Present Annual Empire Challenge
05/27/2011UnitedHealthcare has agreed to sponsor the 16th Annual Empire Challenge, which showcases the best high school football players from New York City and Long Island while raising funds to help fight cystic fibrosis.
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New CF Wind Sprint Demonstrates How to Use the PowerLung
05/25/2011As part of its CF Awareness Month focus on exercise, the Boomer Esiason Foundation has released Episode 17 in the Cystic Fibrosis Wind Sprint series: Using the PowerLung.
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WCBS-TV to Air PSA on CF Run to Breathe
05/25/2011WCBS-TV in New York soon will air a public service announcement promoting Boomer's Cystic Fibrosis Run to Breathe, a 10K run in Central Park on July 9.
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Researchers Identify Genes Linked to Worsening of CF
05/23/2011Researchers at the Johns Hopkins Institute for Genetic Medicine have discovered two regions of the genome that affect the severity of cystic fibrosis.
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U.S. News Releases 2011-12 Rankings of Best Children's Hospitals
05/20/2011Children's Hospital of Philadelphia tops the list of top-ranked pediatric hospitals for pulmonology in the 2011-12 U.S. News rankings of best children's hospitals.
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Abbott Test Assists in CF Screening
05/20/2011A genetic test from Abbott provides information used for cystic fibrosis carrier screening, newborn screening and confirmation of CF diagnoses in newborns and children.
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New Podcast Discusses Life Before and After a Double-Lung Transplant
05/18/2011The Boomer Esiason Foundation has posted a new video podcast featuring Valerie Batz, a 52-year-old with cystic fibrosis who discusses life before and after a double-lung transplant.
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Run for a Cause: Set - and Achieve - an Exercise Goal
05/16/2011Registering for a local race can be a little scary, especially if you’ve never before run a road race. But setting a goal – like running your first 5K – is a great way to start a fitness program and, hopefully, a healthier lifestyle. It also gives you the opportunity to support the cystic fibrosis community by running for a cause.
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What's Your CF IQ?
05/13/2011Test your cystic fibrosis knowledge and show your support for the Boomer Esiason Foundation by taking the "What's Your CF IQ?" quiz sponsored by Gilead Sciences.
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Toronto Student Finds CF Treatment by 'Hacking' Supercomputer
05/12/2011Canadian high school student Marshall Zhang used the Canadian SCINET supercomputing network to find a potentially effective drug cocktail to treat cystic fibrosis.
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Jerry Cahill Awarded Ellis Island Medal of Honor
05/11/2011BEF Volunteer Jerry Cahill on May 7 received the Ellis Island Medal of Honor, awarded annually to American citizens of diverse origins for their outstanding contributions to their communities, their nation and the world.
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New Podcast Focuses on Adulthood With CF
05/09/2011The Boomer Esiason Foundation has posted a new video podcast featuring Kay W., who discusses how she lives life to the fullest as a 49-year-old with cystic fibrosis.
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WBUR Special Report on VX-770
05/06/2011WBUR's "Common Health" takes a closer look at the Vertex drug VX-770 in its recent special report, "New Cystic Fibrosis Drug Brings Gift of a Future."
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New CF Wind Sprint Demonstrates Cardio Exercises
05/04/2011The Boomer Esiason Foundation has released Episode 16 in the CF Wind Sprint series: Cardio Exercises. In the video, BEF Volunteer Jerry Cahill shares his favorite simple cardio exercises that help keep the lungs clear of mucus.
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Simple Exercise Improves Lung Function in Children with Cystic Fibrosis
05/03/2011A Johns Hopkins Children's Center study of kids with CF shows that simple exercise, individually tailored to each patient’s preference and lifestyle, can help improve lung function and overall fitness.
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NYRR Opens Registration for Boomer's Cystic Fibrosis Run to Breathe
05/02/2011The New York Road Runners today opened registration for the inaugural Boomer's CF Run to Breathe, a 10K run/walk to be held July 9 in Central Park.
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CF Awareness Month 2011: The Power of Exercise
05/02/2011May is CF Awareness Month, and this year, the Boomer Esiason Foundation is encouraging the CF community to take advantage of the power of exercise. Watch Jerry Cahill's kick-off video for more information.
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New CF Wind Sprint on Stretching
04/27/2011Episode 15 of the CF Wind Sprint series focuses on stretching before exercise to help improve blood flow, prevent injuries and improve breathing.
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Drug Combo for CF Lung Infections Could Address Antibiotic Resistance, Researchers Say
04/25/2011An over-the-counter drug used to treat diarrhea combined with minocycline, an antibiotic used to treat bacterial infections, could one day change the lives of those living with cystic fibrosis.
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FDA Rejects Liprotamase, Calls for More Studies
04/18/2011The FDA has rejected Eli Lilly and Co.'s EPI drug candidate liprotamase and has ordered the company to conduct additional clinical trials on the potential therapy.
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Boomer Urges Donor Registrations in New York State Campaign
04/13/2011The New York Organ Donor Network kicked off National Donate Life Month with a campaign – headlined by Boomer Esiason and Grizz Chapman – to increase organ donation registrations in the state.
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New Podcast on Getting Motivated Before and After a Lung Transplant
04/12/2011The Boomer Esiason Foundation has posted CF Podcast 101: Motivation - Before and After a Lung Transplant. The podcast features Dottie Lessard, who continues to achieve and re-invent herself 16 years post-double-lung transplant.
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CF Patients Fight Grim Prospect with Bright Outlook
04/11/2011What would it be like to be born with a target on your chest? A bull’s-eye stamped with a number smack in the middle of the hub? Tim Wotton knows. Gunnar Esiason too.
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CFF Expands Vertex Partnership
04/07/2011The CF Foundation is expandin its collaboration with Vertex Pharmaceuticals for the discovery and development of additional drugs aimed at treating the underlying cause of cystic fibrosis.
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New Molecular Structures Could Fight Infectious Diseases Better than Conventional Antibiotics
04/04/2011Researchers from IBM and the Institute of Bioengineering and Nanotechnology discovered a nanomedicine breakthrough in which new types of polymers were shown to physically detect and destroy antibiotic-resistant bacteria and infectious diseases like Methicillin-resistant Staphylococcus aureus, known as MRSA.
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Clinical Trials Legislation Takes Effect
04/04/2011A new law that allows patients with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits has gone into effect.
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Pittsburgh Hospital Leads in Lung Transplants
03/30/2011Increased referrals from around the country and surgeons' ability to use donor lungs once considered unsuitable contributed to a record 131 lung transplants at University of Pittsburgh Medical Center last year.
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Vertex Press Release on VX-770 Phase 3 Clinical Trial
03/30/2011Read the complete Vertex Pharmaceuticals press release on its recent findings in the Phase 3 clinical trial of VX-770.
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VX-770 Trial: 'Profound Improvement' in Kids
03/30/2011Vertex Pharmaceuticals reports positive results from Phase 3 clinical trial of VX-770 for children age 6 to 11.
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New Wind Sprint on Core Exercises
03/28/2011Episode 14 of the CF Wind Sprint series focuses on strengthening your core muscles in order to make your coughs more productive.
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Pig Model Of CF Improves Understanding Of Disease
03/17/2011A pig model that replicates the most common form of CF can be useful in learning about the CFTR protein's properties, researchers have found.
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Researchers Explore 4-D Imaging of CF Lungs
03/14/2011Researchers soon will explore 4-D imaging of lungs in young children with CF.
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BEF Scholarship Apps Due 3/15
03/11/2011Applications for the Boomer Esiason Foundation's general academic scholarship are due March 15.
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FDA Panel Not Sold on Personal Genetic Testing
03/09/2011An FDA advisory panel said March 8 that genetic tests directly marketed to consumers should be allowed only under a doctor's supervision.
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New Team Boomer Video: Why Do You Run?
03/01/2011The Boomer Esiason Foundation has released a new video to encourage people to join Team Boomer and run for a cause.
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VX-770 Achieves Positive Results in Phase 3 Clinical Trial, Vertex Announces
02/23/2011Vertex Pharmaceuticals Inc. announced positive results from the Phase 3 STRIVE study of VX-770, a potential therapy that targets the defective protein that causes CF.
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Axcan Pharma CEO Explains Impact of Axcan-Eurand Merger
02/14/2011Axcan President and CEO Frank Verwiel explains how Axcan's merger with Eurand will affect customers.
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FDA Committee Declines to Recommend Liprotamase for EPI
01/13/2011An FDA advisory committee voted to recommend non-approval of liprotamase, currently under FDA review for the treatment of exocrine pancreatic insufficiency.
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Mpex Starts Phase 3 Clinical Trial of Aeroquin? for Treating Chronic Bacterial Infections in CF
01/10/2011Mpex Pharmaceuticals, Inc., today announced it has initiated its Phase 3 clinical trial program with Aeroquin? (MP-376) for the treatment of pulmonary infections in patients with cystic fibrosis.
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Inspire Reports Disappointing Results for TIGER-2 Denufosol Phase 3 Clinical Trial
01/04/2011Inspire Pharmaceuticals, Inc. today announced disappointing results from its second Phase 3 clinical trial, TIGER-2, with denufosol tetrasodium for the treatment of cystic fibrosis.
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Phase 3 Trial of Ataluren Expected to be Completed in 2011
12/21/2010PTC Therapeutics, Inc. announced today that it has completed enrollment of a Phase 3 clinical trial of ataluren, an investigational new drug, in patients with nonsense mutation cystic fibrosis (nmCF).
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Denufosol Phase 3 Trial Published in Leading Medical Journal
12/17/2010Inspire Pharmaceuticals, Inc. announced today that the results from its first Phase 3 clinical trial with denufosol tetrasodium for cystic fibrosis, TIGER-1, have been published in the American Journal of Respiratory and Critical Care Medicine.
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TCU Senior Wins 2010 Rimington Trophy
12/09/2010Texas Christian University senior Jake Kirkpatrick has been named the recipient of the 2010 Rimington Trophy. The Trophy, named for Boomer Esiason Foundation President David B. Rimington, is awarded annually to the most outstanding center in NCAA Division I-A football.
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Samsung, Sears and BEF Team Up to Tackle Cystic Fibrosis
12/01/2010The Boomer Esiason Foundation has joined with Samsung Hope for Children, the national philanthropic initiative of the world's technology leader, and Sears to launch a new social action campaign, "Tackle CF with Boomer Esiason." The new initiative will benefit the former NFL quarterback's foundation, which supports medical research to find a cure for cystic fibrosis (CF) and also helps provide a better quality of life for those affected by the chronic disease.
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New England Journal of Medicine Publishes Phase 2 Study of VX-770 for Treating Cause of CF
11/17/2010In a study published in this week's New England Journal of Medicine, treatment with a new drug candidate known as VX-770 resulted in improvements in lung function and markers of disease in a Phase 2 clinical trial of 39 people with cystic fibrosis.
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Phase 2 Results Show Ataluren Restores Production of Functional CFTR Protein
11/16/2010PTC Therapeutics, Inc. today announced the publication of data from a Phase 2a clinical trial of ataluren in children with nonsense mutation cystic fibrosis (nmCF) in the American Journal of Respiratory and Critical Care Medicine. The published data show that treatment with ataluren, an investigational new drug, resulted in statistically significant improvements in the production and function of cystic fibrosis transmembrane conductance regulator (CFTR), a critical protein lacking in CF patients.
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Cystic Fibrosis Gene Typo is a Double Whammy
11/12/2010An imbalance of salt and water in patients with cystic fibrosis makes their lungs clog up with sticky mucus that is prone to infection. The cause of the offending imbalance is a well-known genetic error, one that blocks the molecular expressway for tiny chloride ions to move across the surface of the lungs. But how does that same gene mutation upset a parallel roadway controlling the flow of the other component of salt, sodium ions?
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Growth Defects in CF May Start Before Birth, Study Finds
11/10/2010A new study using a pig model of cystic fibrosis (CF) suggests that low levels of a growth promoting hormone at or before birth may contribute to growth defects in patients with CF.
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Discovery Labs KL4 Surfactant Granted Orphan Drug Designation for the Treatment of CF
11/01/2010Discovery Laboratories, Inc. today announced that the Office of Orphan Products Development of the United States Food and Drug Administration (FDA) has granted orphan drug designation to Discovery's KL4 surfactant for the treatment of cystic fibrosis (CF). Orphan designation provides for up to seven years of U.S. market drug product exclusivity for the designated indication following marketing authorization.
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Pharmaxis Announces Positive Combined Phase 3 CF Trial Results
10/22/2010Pharmaceutical company Pharmaxis today announced significant results of pooled data from its two large scale six month Phase III trials of Bronchitol (inhaled mannitol) in people with cystic fibrosis.
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Gilead's Cayston Beats Tobramycin Inhalation Solution in Six-Month Head-to-Head Study
10/21/2010Gilead Sciences, Inc. announced that its head-to-head Phase III clinical trial of Cayston® (aztreonam for inhalation solution) versus tobramycin inhalation solution in cystic fibrosis patients with Pseudomonas aeruginosa achieved its co-primary endpoint of superiority of Cayston for mean actual change in forced expiratory volume in one second (FEV1, a measure of lung function) percent predicted across three treatment cycles (six months).
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Analysis Shows TOBI Associated With Reduced Mortality in CF Patients With Common Lung Infection
10/21/2010A new analysis of data from more than 12,000 people with cystic fibrosis (CF) and Pseudomonas aeruginosa (Pa) lung infection in the Cystic Fibrosis Foundation's Patient Registry shows that use of TOBI(R) (Tobramycin Inhalation Solution, USP) was associated with a 21% reduction in mortality in the following year. The results were presented today at the 24th Annual North American Cystic Fibrosis Conference (NACFC) in Baltimore, Maryland, sponsored by the Cystic Fibrosis Foundation.
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Vertex Pharmaceuticals Clinical Trial to Evaluate Combo of VX-770 and VX-809 Targeting CFTR Protein
10/18/2010Vertex Pharmaceuticals Inc. today announced the initiation of a Phase 2a clinical trial that will evaluate multiple combinations of VX-770 and VX-809, investigational oral cystic fibrosis transmembrane conductance regulator (CFTR) modulators for the treatment of cystic fibrosis. The trial is designed to evaluate the safety and tolerability of VX-809 dosed alone for 14 days followed by dosing of VX-809 in combination with VX-770 for 7 days. The trial will also assess the effect of VX-809 alone and in combination with VX-770 on CFTR function, as measured by sweat chloride. The three-part trial is designed to enroll up to a total of 160 people with two copies of the F508del CFTR mutation, the most common mutation in the CFTR gene.
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Impaired Metabolism in CF Lung Epithelial Cells Revealed by Metabolic Analysis
10/15/2010Note from BEF: This Metabolon press release details a newly published research paper. The paper's findings "reveal novel metabolic abnormalities associated with the CF pathological process and identify a panel of potential biomarkers for therapeutic development using this model system," according to Metabolon. The company's metabolomics-driven approach enables the identification of biomarkers useful for the development of a wide range of diagnostics and provides insight into complex biochemical processes such as drug action, toxicology and bioprocess optimization.
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Bacteria Identified as New Foe for CF Patients
10/07/2010A new study links flare-ups of cystic fibrosis to a chronic bacterial infection, a finding that could give physicians new insight into the disease and offer a new target for medication.
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Human Growth Hormone Shows Promise in Treating Cystic Fibrosis Symptoms
10/04/2010Human growth hormone can be used successfully to treat some symptoms of cystic fibrosis, but its impact on the disease itself remains unknown, according to a new report funded by U.S. Department of Health and Human Services' Agency for Healthcare Research and Quality (AHRQ).
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University of Texas Researcher Receives $2.1 Million Grant to Focus on Drug Delivery to Lungs
09/28/2010A University of Texas at Austin College of Pharmacy researcher has received a $2.1 million grant to develop new techniques for drug delivery to the lungs, helping in the fight against such lung diseases as cystic fibrosis.
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'Improving Access to Clinical Trials Act' Passes U.S. House; Heads to President for Signatur
09/23/2010The U.S. House of Representatives passed the "Improving Access to Clinical Trials Act" (I-ACT), in a victory for the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations.
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PTC Therapeutics Awarded $1.6 Million FDA Grant to Support Ongoing Phase 3 Study of Ataluren
09/21/2010PTC Therapeutics, Inc. announced a grant award of approximately $1.6 million from the U.S. Food and Drug Administration Office of Orphan Products Development to support an ongoing Phase 3 study of ataluren in patients with nonsense mutation cystic fibrosis.
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iTunes Offers New App for Jerry Cahill's CF Podcasts
09/20/2010The Boomer Esiason Foundation is pleased to announce that the cystic fibrosis podcast series produced by BEF Volunteer Jerry Cahill now is available on your iPhone, iPad or iPod Touch.
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Researchers: Vitamin D May Treat, Prevent Allergic Reaction to Mold in CF Patients
09/01/2010Vitamin D may be an effective therapy to treat and even prevent allergy to a common mold that can cause severe complications for patients with cystic fibrosis and asthma, according to researchers from Children's Hospital of Pittsburgh of UPMC, the University of Pittsburgh School of Medicine and Louisiana State University School of Medicine.
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Luminex Announces Commercial Launch of New CF Genetic Screening Test
08/26/2010Luminex Corp. announced the full commercial launch of a new diagnostic test that can simultaneously screen a single blood sample for up to 60 cystic fibrosis-causing genetic mutations in a matter of hours.
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BEF Awards $10,000 Scholarships to Two Student-Athletes
08/19/2010The Boomer Esiason Foundation has awarded $10,000 scholarships to two college freshmen with cystic fibrosis.
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Out of Grief Sprouts a Life-Saving Legacy
08/17/2010You don't have to be rich, famous or even an adult to leave a memorable legacy that can change lives.
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'Improving Access to Clinical Trials Act' Passes U.S. Senate in Victory for CF Advocates
08/06/2010The U.S. Senate last night passed the "Improving Access to Clinical Trials Act," a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations.
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New CF Drugs Bring Hope; More Survive Into Adulthood, But They Face New Challenges
07/27/2010Emily Schaller likes to travel as part of the cystic-fibrosis advocacy she does, but the daily regimen she uses to manage her disease weighs her down. "You have to bring three extra bags with meds and the vest," she said.
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Eurand Reports Further Positive Data from Pancreatic Insufficiency Drug Study
07/21/2010Eurand Pharmaceuticals, a subsidiary of specialty pharmaceutical company Eurand, has announced additional data from a post-hoc analysis of a Phase III clinical trial with Zenpep delayed-release capsules, an FDA-approved pancreatic enzyme product, or PEP, for the treatment of exocrine pancreatic insufficiency in patients with cystic fibrosis or other conditions.
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Cincinnati Children's Cited in US News Report As a 'Best' Hospital for CF Kids
07/19/2010A 'best' hospital for CF kids: unhappy with its so-so record, Cincinnati Children's used tools of health reform to turn itself around.
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Limit Antibiotics for CF Exacerbations to 10 Days, Registry Study Says
07/16/2010A retrospective analysis of more than 1,500 patients suggests nothing is gained by extending intravenous (IV) antibiotic treatment beyond 8 to 10 days, or by giving antibiotics in the hospital.
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Lilly to Acquire Alnara; Company's Liprotamase Currently Under FDA Review
07/02/2010Eli Lilly and Company and Alnara Pharmaceuticals, Inc. today announced they have signed a definitive merger agreement whereby Lilly will acquire Alnara, a privately held biotechnology company developing protein therapeutics for the treatment of metabolic diseases.
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New Study Examines Impact of MRSA on CF
06/16/2010A study published today in the Journal of the American Medical Association examines the effect that methicillin-resistant Staphylococcus aureus (MRSA) has on people with cystic fibrosis. It found that chronic infection with MRSA in people with CF was associated with worse survival than those who don't have the bacteria.
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Researchers Still Expect Genetic Mapping Project Will Lead to New Drugs
06/16/2010Ten years after President Bill Clinton announced the completion of the first draft of the Human Genome Project, its application to drug development is still, at best, a work in progress. But while many genetics scientists outside the drug industry say the project has had few medical benefits, industry researchers urge a wait-and-see patience.
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FDA Extends Availability of Pancreatic Enzyme Therapy Pancrease Until Mid-July
06/09/2010The CF Foundation has learned that the U.S. Food and Drug Administration will allow wholesalers to distribute the pancreatic enzyme product Pancrease® MT to pharmacies until July 12, 2010. At that time, an updated formula called PancreazeTM will become available and will replace Pancrease.
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Pancreatic Enzyme Therapy Pancrease to Have Limited Availability, CFF Says
06/08/2010The Cystic Fibrosis Foundation has learned that the pancreatic enzyme product Pancrease will be available in limited supply at pharmacies around the country until an updated formula called Pancreaze is made available this summer.
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Data Suggest Denufosol May Hold Promise as an Early Intervention Treatment for CF
05/19/2010Inspire Pharmaceuticals Inc. announced today that Inspire scientists will present data suggesting that denufosol, an inhaled ion channel regulator, has properties that allow it to reach and improve lung function in the small airways, which may support its potential as an early intervention therapy.
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Mpex Presents Positive Phase 2 Clinical Trial Results of Aeroquin Treatment in CF
05/17/2010Mpex Pharmaceuticals, Inc. today announced the presentation of data from its Phase 2b clinical trial with Aeroquin that demonstrated statistically significant improvements in bacterial load, respiratory function and time to need for anti-pseudomonal antibiotics versus placebo in a heavily treated patient population.
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Azithromycin Doesn't Always Help Lungs in CF Patients Without P. Aeruginosa, Study Finds
05/05/2010Children and adolescents with cystic fibrosis who received the antibiotic azithromycin did not experience improved lung function, compared with patients who received placebo, according to a study published in the May 5 issue of the Journal of the American Medical Association.


